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I guess we've all had the experience of talking with someone about our PD and
hearing they know someone, who knows someone whose symptoms were twice as bad as
yours, and how they took this new wonder drug and were scheduled to dance in the
next ballet. Inference:  You've got the wrong doctor and medicines.  This
happened to me about a month ago.  I asked for the party's name.  Couldn't
remember it but, if he remembered, he'd call.  Yeah!!  Right!!

Joke was on me.  Turns out, he was a customer of the party I was talking to and
he had stopped in on Friday,  My friend called with a name and phone number.

I called and talked to his wife this afternoon.  Her husband is in his mid
seventies, diagnosed 20 years ago.  (interesting  side light.  Two siblings and
his mother had PD).  She told me that a year ago she had to help feed and dress
him.  He could hardly walk.  He enrolled in this research study.  Now he can
feed and dress himself and can walk with the aid of a cane.  Wonder Drug:
"PRANIPEXOLE" (Excuse spelling.  Couldn't read my writing.)

Please don't get me wrong.  I have no ulterior motive in pushing this
medication.  I was just thrilled at getting a first-hand experience of hearing
about something that really worked for somebody.  Also glad to find somebody,
other than Jim Cordy, whom I have never had the pleasure of meeting, but
graciously gave me, a month ago, the name of the Clinic and doctor who had
conducted this study, and Marge Nessler who has sent me notices of meetings in
Pittsburgh.  Without them I would think I was the only PWP in Western Pa. :-)

I intend to contact this Movement Disorder Clinic tomorrow.

Joe Young (65/92)
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