 |
 |
At 03:25 PM 4/25/97 -0400, you wrote: >Can anyone offer me any help please. > >I have had PD for 11 years now, take Sinemet CR 25/100 + Lysuride (Revanil) >200mcg, 4 times a day at three and a half hour intervals. First dose of the >day I also take half a Sinemet LS tablet. I suffer from the on/off >fluctuations whereby I can be fine for two or three days at a time with no >off periods, then I have a bad day where I can be off some or even all the >day. > >The off periods vary a lot. Sometimes they are short lived and not too >uncomfortable or disabling but sometimes they last a long time and I am VERY >uncomfortable with bad muscle aches in my thighs and lower back and and very >rigid all over with some tremor and I just don't know what to do with myself. > I cannot lie comfortably in bed although that's where I feel I want to be. > I had one of these sessions last evening and started to write to the list >for help but was so uncomfortable I had to stop. So I am writing now whilst >I am OK. > >I have to go for my regular six monthly check up with the neurologist on >Tuesday 29 April and wonder, before I go, if any one has any tips. I just >can't imagine how people coped before the PD medication became available. > When I have these phases I just tell myself that are not permanent and I >will feel better eventually. The trouble is when I am like this although I >usually take a Sinemet LS to try and release me, it can take some time and >sometimes doesn't work at all. > >I don't really want to increase my regular doseage or timings of medication >as I am afraid of overdosing since I have many good days (i.e. in a 28 day >period I recently recorded I had 14 days in which I had no off sessions and >14 days in which I had some off sessions of varying degrees). > >I realise from reading the list messages over the last 4 months or so I have >been on the list that this is probably quite "normal" in those who have PD >for a few years so I just wonder how others deal with it. > >Many thanks > >Best wishes to you all > >Susan 43/11 >[log in to unmask] > susan do like i do put some horse limenpent no kidding. cry lot but crarry on i fell yesterday so back to cruches,for while. see wet spots tears. well guse i am not funny. hang in there. don I.Y.Q.