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---------- > Fra: Barbara Blake-Krebs <[log in to unmask]> > Til: Multiple recipients of list PARKINSN <[log in to unmask]> > Emne: Rau Lakin, I agree > Dato: 25. april 1997 18:02 > > Ray Lakin ([log in to unmask]) wrote: > When I read of the variation in dose rates which are given on this List, > and of some of the problems of hallucination etc., which are > described I am left with the query as to how much of the problem is due > to the disease, and how much is caused by the medication. If the latter, > is the reduction in Parkinson symptoms worth the associated discomfort > of the > treatment, and can this be reduced by the patient optimising the doseage > to suit him/her self?. > > All the usual disclaimers apply - I can't afford any expensive legal > action - but I would welcome comments from any one who is more > knowledgable; after all it is Helen who has Parkinsons, not > me!. > _____________ > Ray, I have been dx w/PD for 13 years. I totally agree with point that it is > the patient who should work out what meds best suit him/her. Hopefully her > doctor will have the same philosophy and will advise her in a way she is > comfortable. My main neuros, PD Specialists have been great this way. My > roughest time to date was during a period when I was seeing a non-PD neuro > who crammed a regimen down my throat, so to speak. My husband has always > left it up to me. > > Regards, > > Barbara Blake-Krebs > [log in to unmask] Hello Barbara and Ray. I agree too. I had my diagnose 3 1/2 years ago, and the first 1 1/2 - 2 years I didn`t had the courage to take more or less than prescribted, to day I have reduced my med. from 1000 mg. Sinemet R to 700 mg, because I was more ill from side effects from Sinemet and Permax, I suggested it to my neurologist and it was OK. He always say to me: you PWP are the experts - I`m not yet, because still I`m quite sure if it is the disease or Sinemet which is most inconvenient. Regards from Sonia Nielsen NEVER GIVE UP