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Dear Billy and others,

I also, went through a period of trying to hide symptoms and avoiding
telling anyone of my problem.  We probably all do.

Since then, I have come to the conclusion that by trying to stay invisible I
am hindering the progress towards public awareness, more funding and a
possible early cure.  I realise that there may be reasons why an open
approach with one's employer may not be advisable, but other than that or
similar circumstances, I would urge all people with PD to take opportunities
to inform the public.

I am not suggesting we stand shaking on sreet corners with a notice around
our necks.  However, if we struggle at the checkout or at the bank, a quick,
"Sorry, I have Parkinsons and it affects my movement and co-ordination",
will not hurt.  Under the right circumstances, a futher few words such as,
"Still, can't complain, some people with PD are confined to bed and
wheelchair", are easy.

Said with a smile and perhaps a joke about the handwriting, there are many
instances where one more member of the public can be made aware in only a
minute or so that:

a. PD is nasty and progressive.

b. It does not only affect old people.

c. The people like me they meet, are only the tip of the iceberg.

After all, why have a Parkinsons awareness week once a year and then go back
to hiding for another 51 weeks?

I will be adding Ropinerole to my three daily dosages of Sinemet CR 200/50
this week.  Will let you know how I get on.

Ernie.  Age 54. diag 3.4 yrs.
Ernie Peters <[log in to unmask]>