Subj: Re: Who do you tell?
Reference to the PD pins, do you have an address? To be silent is submit to
"shame" and I've had enough of that from my own silence after having served
in Viet Nam. The public is going to know, but probably their knowledge will
be based upon their limited medical concept... and if you don't "tell them",
they will form their own conclusions and most likely look at you with
pity....or worst. Is that what you want? I do not... I may apologize for
my distracting tremor, but I go on with what I have to do and that seems to
work best. I believe that they see that when it doesn't bother me then they
can bear with me. I find many want to understand more. That's one of the
problems, we don't talk about it--like so many other things--look at what a
problem we have when we shun an education and go by word-of-mouth.
As far as employment goes, even with all my credentials (i.e., MDiv.,
MEd., NCC, LPC, and over 25 years experience in the field of counseling, I
haven't been able to get a job since I completed my second masters in 1993
except private contracting. Now, at age 61, I may have to apply for Social
Security disability, but I am not going to stop my private practice, although
I may have to start doing that on the internet if I can get some of the
problems worked out.
I identify my self as a PWP. Am I proud of being a PWP, no....but I am
proud of those who are my comrades with Parkinson's, who are surviviors and
great people in spite of their situations. And I am not ashamed!
I responded to this subject previously but I don't think it was posted.
I include it now. I'd be proud to wear a pin....
Subj: Re:Who Do You Tell? Tell the World!
Date: 97-04-27 11:30:10 EDT
From: Namvet6970
To: [log in to unmask]
Why tell the world? Because we care. As we touch others, we help
ourselves and others to heal...we touch and are touched and we know we are
not alone! We share our stories to warn, to provide information that not
only helps other caregivers and comrades of PD, but provides neurologists,
doctors, and other professionals, who know about and care enough to read this
list, with information that may help us all in the future. As we share our
stories we learn that there are differences --- in meds, in symptoms, in
pain, in coping, in possible causes, etc. -- yet we are similar.
Whether from Agent Orange, massive blows to the head, well water, genetic
predisposition, toxic chemicals within or from without, or by other means, as
we 'tell', we learn. .....we have hope......
I share my (ongoing) story and it can be read on Jerry's Web Site
under:Cry for Help Read the story of Moss first.
http://www.phoenix.net/~jfinch/
Jerry's stories and the writings (i.e., poems, humor, etc.) on the list, help
me get in touch with where and who I am--and was...... I hope my story helps
someone else.
Welcome Home. Shaking, but 'still' in His service,
Rudy
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