^^^^^^GREETINGS FROM^^^^^^^^^^
Ivan Suzman 47/10 [log in to unmask]
Portland, Maine land of lighthouses 55 deg. F rainshowers and windy
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DEAR CLAUDIA,
Thank you for sharing you wonderful story. My Parkinson's began at
37, and is called Young Onset Parkinson's. I have never met anyone whose
Parkinson's started younger than about 31 or 32, although it definitely
happens.
My older brother, now 51, has Juvenile Onset Diabetes, which started
at age 16. I wondered about this, since both of us are "earlier" than
usual in our onsets, and eventually surveyed our Parkinson's List
members, asking them, "DO YOU HAVE A DIABETIC RELATIVE?"
I am busy processing the 101 responses. Would you like to join in
the survey?
If so, just post to the List your answer, and indicate, if the answer
is yes, whether the relative(s) is on your mom's or dad's side of the
family, and who it is, and the age of onset of the Diabetes.
You are brave, and we are fortunate to meet you. WELCOME to our list.
Ivan Mfowethu Suzman
On Sun, 11 May 1997 23:51:09 -0400 =?iso-8859-1?Q?Cl=E1udia?= Streva
<[log in to unmask]> writes:
>Hi Barbara
>
>Thank you for your welcome message. I'm new in the group and would
>like to
>introduce myself to everybody.
>
>My name is Cl=E1udia. I'm 33 years old. I live in Rio de Janeiro,
>Brazil and
>work with computers (system analyst).
>
>My disease started when I was 18 years old. At that time I went to
>more
>then 30 doctors here in Rio de Janeiro and, at last, I got a wrong
>diagnoses. At that time, I was very bad, with difficulty to do simple
>thinks like dressing. I couldn't work any more. Fortunately, some
>years
>later I met a doctor and he said that I had Dopa Responsive Dystonia (
>Segawa Disease ) and I should take levodopa. That was like a miracle.
>I
>took it and a couple hours later I could walk normally again, take
>care of
>my kids ( I have 2 children - 6 and 5 years old) and be independent.
>I'll
>never forget that day, the emotion that I felt. I started to have
>normal
>life again.
>As time went by, levodopa didn't work as well as it used to and the
>disease
>started to show some signs that made my doctor ask me to go to New
>York to
>see Dr Paul Greene and Dr Nyggard. Dr Nyggard was styding Dopa
>Responsive
>Dystonia and my doctor wasn't sure any more if I have DRD or Juvenile
>Parkinson. Dr Nyggard and Dr Paul Greene were positive that I'm a JPD
>case.
>I started to take pergolide and I got well again.=20
>
>I'd like to share information and experience with all the group, but
>especially I'd like to know if there is any case of juvenile Parkinson
>that
>started so early as mine ( first syntoms at 18 years old ).=20
>
>=20
>Nice talk to you all and sorry about my English
>
>Claudia Streva
>[log in to unmask]
>
