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At 06:55 PM 5/11/97 -0400, you wrote: >>---------- >>> Fra: Audrey Mansfield <[log in to unmask]> >>> Til: Multiple recipients of list PARKINSN <[log in to unmask]> >>> Emne: New member/ Tips on working with PD >>> Dato: 11. maj 1997 03:08 >>> >>> I am new to the group. I would like to say hello and to tell you how >>> wonderful it is to have found you. > >>> I still work full time which is 36+ hours a week in 4 days. I work with >>> large and small groups of students helping them learn accounting in a >>> community college. A co worker drives me to work and back each day. >>> I am so tired at the end of the day that I am afraid to drive. >>> >>> Does anyone else in the group with PD work full time. If so, do you have >>> any tips that may enable me to continue to work for as long as possible. >>> Any ideas would be appreciated. > > >Hello Audrey, >Welcome to the group. > >Yes, I still work full time, even though I was off on sick >leave for 5 months last year. I'm a reference librarian >in a large, metropolitan city (Fort Lauderdale) in Florida. > >I'll tell you what works for me. > >First you have to find what really causes you stress, >your job, home , travel or whatever. Then you need to >see about eliminating as much of the stress as possible. > >I hired a cleaning woman who comes in bi-weekly, > and once a year I hire someone >to come in and clean all my windows and clean the carpets. >My Husband has been retired for 6 years, but he also suffers >from diabetes, and besides , when he retired he said he >didn't retire to become a house husband. So by hiring these >things done, it saves a lot of stress for both of us. > >Second, you have to learn to live with your fatigue~~~it's not going >to go away, unfortunately. Sometimes a 15 minute nap in the >lounge chair, when you first come home from work,will enable >you to get up refreshed. I always drink a glass of fruit juice >when I first get home. It seems to dull the fatigue some. > > We eat out at least 2 X's per week and sometimes >more. With the Senior Citizens discounts they have down here, it >really doesn't break the budget , and it saves the evening for me to >quilt. > >Three: >Save some time and energy to do something you like to do. >The best advice my Neurologist ever gave me was, when I >wake up a 3 a.m. wide awake~~get up and do something >constructive for yourself. Most of my quilts and quilted vests >are finished at 4:30 in the mornings. I'm lucky that I work >10-6 so I don't have to get up really early, except we have >two Doxies, who refuse to let me oversleep. > >Four: >Learn to pace yourself. You just can't do as much as you >could before, so don't try to fool yourself into thinking that >you can. Also learn to say "NO". There are too many >unnecessary things people seem to feel compelled to >do. Don't fall into that trap. > >Fifth: >Accept the fact that some days are going to be what librarians >refer to as "full moon" days. Everything goes wrong, all the nuts >come out, and you end up wondering why you ever got out of bed. >Unfortunately, there are many "honorary full moon days, too". >Generally however, they seem to happen all in one day, and then >the next day will be almost normal. > >Sixth: >Somedays it will seem as if your Sinemet isn't working at all. > On those days, try to postpone as many important decisions as possible. >Try to take a few hours sick leave and go home early. >You've earned it. > >Seventh: >Probably the most important thing is to find yourself an email >friend who also is a PWP. You'd be amazed how much easier >life is, when you can share your problems with someone who >also has PD, and completely understands what you are telling >them. > >As Ever, >Marjorie Moorefield >just another librarian, >with PD >64/9 > marjorie said it all right. pd for 25 yrs. 72yrs old was conn. owner. till my cg retirred me. don I.Y.Q. [log in to unmask] lima ohio