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>To: [log in to unmask] >From: jim and emily jackson <[log in to unmask]> >Subject: Playing catch-up > >Greetings from another new subscriber. (Thanks, Barb, belatedly).I am the wife of a 69-year-old retiree who was diagnosed within the last year, in early stages. For the past couple of weeks I have been quietly following the list-- funny, heart-rending, informative--learning the ins and outs of all this. So much to absorb! Now I have some beginner's questions: >1. Re: Udall Bill: I do not understand the mechanics of this effort. Our TX Senators' and local Rep's names have not shown up in any comments re bill support since I have been on list. So what does this mean and how do we react? >2. I need a frame of reference (for planning local publicity): specifically, how do the current numbers of diagnosed PWPs compare with those of those with other perhaps better-known conditions, ex: PWAs, etc.? >This is all new to both of us. I wish to become a purposeful and informed advocate, and intelligent CG if that becomes necessary. The postings of this list are wonderful. My admiration to all whose comments I have been reading. >Emily Jackson >[log in to unmask]