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Hi Sue, > I am particularly interested in your description of the 'floppies'. I am 45 > and have not been diagnosed with PD, but have calcification of the basal > ganglia, which apparently produces a Parkinson syndrome. However, my problem > is more weakness and intermittent floppiness, with episodes of virtual > paralysis, when only my eyelids flicker and wrists and hands twitch. I am not a medical doctor, but only one part of a multi-disciplinary team researching the epidemiology of PD in rural areas. But there are many reports of PWP's experiencing a state where they are incapable of moving, not because of the suffering effects of bradykinesia usually felt, where the muscles are in a state of prolonged contraction, but because of muscles in a state of prolonged relaxation. Fortunately, this state seems relatively rare, passes within 2-4 hours, and apparently leaves no side-effects. Very worrying if one hasn't assistance on hand, though. > I would really appreciate any more information you could supply regarding > this, as I am finding this prelonged period of non-diagnosis very trying. My > symptoms also include fatigue, double vision, blurred vision, joint pain, > sensory disturbances, dragging feet when tired. These are all symptoms experienced by PWP's, but unfortunately, with regard to diagnosis, not confined to PD. PD is a much more complex disorder than most shallow descriptions of it, even in respected medical texts, would have us believe. For example, their are over two dozen other complaints which could be misdiagnosed as PD. I am very sorry to hear of the agony of mind you must be experiencing while waiting for confirmation, but a confident diagnosis of PD by a truly professional neurologist does, I am afraid, take time. > I apologise once again for butting in, No PWP *ever* has to apologise to me. :-) Jim