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On Sun 01 Jun, Mark F. Hardy wrote: > You wrote: > From: Ida Kamphuis [SMTP:[log in to unmask]] > Sent: Saturday, May 31, 1997 4:49 PM > To: Multiple recipients of list PARKINSN > Subject: a different schedule of med's > > Hello listmembers, > > It is time to give an update of my adventures with Parkinson after all the > talking about di-phasic dyskinesia some time ago. > So I gave it a try. I did not take more sinemet than I used to > Ida Kamphuis, 53/12+ > Holland > > I've been more of a lurker than a participant. Today, I'm the latter! > > Diagnosed with PD in 93 - taking Eldepryl & Sinimet ever since - started on Permax abo > ut 2 months ago. I have some questions about my symptoms - I guess it's my med's wear > ing off, but am not sure. I have noticed lately that my shuffling is much more freque > nt & more severe - it comes in spurts, not all the time, is more noticeable when I've > been sitting a while and have to walk somewhere, EXTREMELY short choppy steps - eventu > ally it goes away. Have also noticed my left arm jerks, it wants to close up versus b > eing extended, the muscles are sore and ...... > > Anybody else have these symptoms or know what they could mean? I'm not sure whether i > t's the Permax (since I just starting taking it), normal PD progression, my not taking > my meds in the most effective way, or what. Protein? No change there, except maybe > eating a little less. > > thanks, > Mark Hardy > [log in to unmask] > Hello Mark, The symptoms which you describe look to me like the result of being under-medicated. The short stuttering steps are (I think) an early form of freezing - this typically goes away as you concentrate on it, and once it goes, you can walk normally again. It is an unfortunate fact of life that as time goes on, the dose which used to work, no longer does. It is not simply a case of doubling up on your tablets, we are talking subtle changes, but it can be done with care. Regards, -- Brian Collins <[log in to unmask]>