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---------- > Fra: Barbara Mallut <[log in to unmask]> > Til: Multiple recipients of list PARKINSN <[log in to unmask]> > Emne: FW: *Parkinsn List Study Group* > Dato: 6. juni 1997 23:13 > > 1. How did you first learn about the Parkinsn List? > > I read about it in the YPDA BBS run by Greg Johnson > > 2. When did you first join the Parkinsn List? > > About 3 years ago, give or take a coupla months > > 3. What reason(s) did you have for joining the Parkinsn List? > > I have PD and was not getting any useful information from my then neurolgist > (in his behalf, he was NOT a movement disorder specialist) > > Barb Mallut > [log in to unmask] > > -----Original Message----- > From: Parkinson's Information Exchange On Behalf Of Leslie Van Dover > Sent: Friday, June 06, 1997 1:34 PM > To: Multiple recipients of list PARKINSN > Subject: *Parkinsn List Study Group* > > From: Parkinsn List Study Group; McMaster University School of > Nursing,Hamilton, Ontario, Canada; Sheryl Boblin-Cummings Ph.D., RN, > Dauna Crooks D.N.S., RN, Barbara Patterson, Leslie Van Dover Ph.D., RN.; > Mary Fawcett, MHSc, RN. > > > We have been looking at messages from the Parkinsn List archives to > develop an understanding of how people use the list and its value to > them. From this, we have some ideas about "what is going on on the > List?". We would now like to hear directly from list members about your > experience with the Parkinsn list. > > We will be posting some questions to the List over the next few weeks; > your answers will help us to better understand your experience and to > interpret it to others. You can choose to respond to these questions or > not. If you share your expertise and experience with us, we will be > grateful. It's important for us to hear from you IN YOUR OWN WORDS. If > you find it too difficult to respond or are not interested, that's OK. > > The questions will be posted at weekly intervals. You can respond to > some questions and not others, as you wish. You can respond "on list" or > privately to: Leslie Van Dover at: [log in to unmask] > > People join Lists for various reasons > > 1. How did you first learn about the Parkinsn List? * I heard about the list from one of my pwp -friends. > > 2. When did you first join the Parkinsn List? * in the month of Jan. 1997, but it was very difficult to find out - HOW to come into the list. > > 3. What reason(s) did you have for joining the Parkinsn List? *I have people from the hole world sharing my feelings, thaughts - read about all the news about medicin, surgery. I have found out in those few month - that we all have so much in common wheresoever we are comming from. Good luck Sonia Nielsen Denmark NEVER GIVE UP