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Bruce, m'friend, I'm sure you're going to be flooded with responses to your
post, but I felt a strong need to let you know I'm thinking of ya and I care.


I've always found cutting back a bit on the drugs helped me rather than adding
more to my daily regimen.  After many years of walking that tightrope, neither
worked and I was just feeling rotten all the time.  That's when I opted for a
pallidotomy, and THAT made a significant improvement in my life! (Not a cure,
mind you, but still very beneficial!)

Hang in there, m'dear.. There are some terrific new drugs in the pipeline
right now which might offer you tremendous relief.

Barb Mallut
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-----Original Message-----
From:   Parkinson's Information Exchange  On Behalf Of B.Bruce Anderson
Sent:   Monday, June 09, 1997 9:37 AM
To:     Multiple recipients of list PARKINSN
Subject:        I am in need of some suggestions

I have an appointment with my neurologist tomorrow morning and need some
help before I see him.

I have been a member of this List for almost two years now.  I'm afraid I
haven't paid a lot of attention to all the postings concerning medications
because my PD symptoms weren't that bad, except for my speech, handwriting,
some fatigue and loss of  balance. Initially, I had some left side resting
tremors, but they stopped almost immediately when I started on the first 3
drugs mentioned below about 2 1/2 years ago.  In the past couple of weeks,
though, my bradykeneisia, I believe it's called, has become severe.  For
the first time since about a week after I was first diagnosed I am starting
to get depressed about the speed my PD is developing.  My shuffling,
hunched over, lurching walk is much worse and is becoming difficult to live
with.  My feet just freeze to the ground for about 5 seconds unless I
really concentrate on   not doing that.  I've almost fallen down the stairs
a number of times and I am concerned what will happen next time I get a
work assignment.  My feet now hurt constantly, probably from my hunched
over posture and lurching walk. That prevents me from exercising.

I take Selegiline(Eldypryl) 5mg 2x/day, Amantadine 100 mg 2x/day, Sinement
25/100 3x/day, Pergolide(Permax) .25mg  2 of them 3x/day, and Amitriptylin
25 mg 1x/day.  I also take all the recommended vitamins, minerals,
antioxidants and DHEA.

 In the past I have gone a full day with no change in my symptoms, but the
symptoms weren't that bad.  About a week ago I started taking 4 of the
Sinements and 8 of the Pergolides instead of 3 and 6.  No change.  I
started taking the meds between meals instead of at them. No change.  Is
there anything else I can do or suggest to my neuro tomorrow??.  I just
never get any relief.  I have been tempted to stop taking everything again
to see what happens, but I am afraid I will get the same result as last
time

Thanks in advance for any suggestions - or comments.