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Sue M.

Before I had my pallidotomy I resembled a feminine (still gorgeous, of course)
<grin> version of Muhammad Ali.. stiff and wooden-like, except when I started
an "on" period after taking Sinemet - and then there'd be some dyskenesia...

When my face was a "mask" (and thank God it's just as expressive now as it had
been prior to the PD!!), even if I was in a crowd I felt "removed" -
distanced, as tho I was observing events from perhaps 30 feet away.  My mind
would be active but felt as tho it was encased in something other then my
body... kind of like it was in a little plastic bubble that had it's own eyes
to observe life going on around it.

It was a lonely feeling even when I was with people, and not a happy nor
comfortable place to reside in.  I've never felt that way since Oct. 24, 1994
- the day I had the pallidotomy - my rebirthday.

Barb Mallut
[log in to unmask]


-----Original Message-----
From:   Parkinson's Information Exchange  On Behalf Of Sue Maltais
Sent:   Thursday, June 12, 1997 8:31 AM
To:     Multiple recipients of list PARKINSN
Subject:        Re: Frozen Masks

In a message dated 97-06-11 08:39:52 EDT, [log in to unmask] writes:

<< Smiles come from deep inside.......for some of us, they don't always show
on
 the surface.

 Rita Weeks
  >>

Rita,
    This is interesting...as I watch my Dad I often wonder if he feels inside
the way his face looks on the outside.

Sue