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Responses to survey Parkinsn List 4. Hoping for news of a cure 5, a) testimonials not found in books b) camaraderie c) hope 6. description of your own symptoms by others - identical to yours At 03:41 PM 6/13/97 -0400, you wrote: >Leslie Van Dover wrote: >> >> From: Parkinsn List Study Group; McMaster University School of Nursing >> Hamilton, Ontario, Canada; Sheryl Boblin- Cummings Ph.D., RN, >> Dauna Crooks D.N.S., RN, Barbara Patterson, >> Leslie Van Dover Ph.D., RN.; Mary Fawcett, MHSc, RN. >> >> Subject: *Parkinsn List Study Group* >> >> We have been looking at messages from the Parkinsn List archives to >> develop an understanding of how people use the list and its value to >> them. From this, we have some ideas about "what is going on on the >> List?". We would now like to hear directly from list members about your >> experience with the Parkinsn list. >> >> We will be posting some questions to the List over the next few weeks; >> your answers will help us to better understand your experience and to >> interpret it to others. You can choose to respond to these questions or >> not. If you share your expertise and experience with us, we will be >> grateful. It's important for us to hear from you IN YOUR OWN WORDS. If >> you find it too difficult to respond or are not interested, that's OK. >> >> The questions will be posted at weekly intervals. You can respond to >> some questions and not others, as you wish. You can respond "on list" or >> privately to: Leslie Van Dover at: [log in to unmask] >> >> People stay on lists for different reasons. >> >> 4. Why do you stay on the Parkinsn List? >> >> 5. What are the three most important things you get from the >> Parkinsn List? >> >> 6. What else are you getting out of belonging to the Parkinsn List? >> >> Leslie Van Dover >> McMaster University School of Nursing >> [log in to unmask] > #1 I find it interesting, and informative > #2 support, current med info and advice > #3 support, support, humor, advice , info, connectivness to others >