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I have recently writen a booklet in which I have tried
to relate what it is 'like' to have PD to the facts of having
PD.  The following is an extract from the section which
deals with the subjective experience of bradykinesia.


Slow movement (bradykinesia)

Bradykinesia, or slow movement is an extremely invasive
symptom of PD.  It affects the PWP on many levels, both
physically and socially.  A glance at the list of symptoms
reads like a 'who's who' of the body and the difficulties
associated with each symptom are self evident.

Body Language:

What is not obvious is that the lack of facial expression,
body movement, blinking, and spontaneity add up to a
lack of body language.  People in conversation with a
PWP often form the opinion that the PWP is not interested
in what they are saying.  They are not getting those little
encouraging nods,  no smiles are forthcoming and the PWP
could even be looking slightly away from them, making no
apparent effort to make eye contact.  It is hardly surprising
that social contacts start to dry up.   Even people who are
aware of the problem have difficulty with it.  Short of hanging
a sign around our necks saying "I am listening-really",  all we
PWP's can do is make sure that people are aware of our
difficulties and then periodically verbally reassure them that
we are listening.

Tiredness:

Another source of friction associated with slow movement is
the misconception that PWP move slowly because they are
tired. This is not the case. Dr Parkinson called this disease
the Shaking Palsy because the bradykinesia is a form of paralysis.
Unfortunately no amount of encouragement or sleep will speed
a PWP up.  However the encouragement is very welcome if
directed at helping to maintaining a positive mental attitude.



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Dennis Greene 47/10
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