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Reply to message from [log in to unmask] of Mon, 16 Jun > >^^^^^^GREETINGS FROM^^^^^^^^^^ >Ivan Suzman 47/10 [log in to unmask] >Portland, Maine land of lighthouses 56 deg. F chilly wind > >*********************************************************** >Dear Listfriends, > >Well I'm only human, and after this year's ordeal of my house being lost >to a fire, I have had a caregiver TRIPLE-WHAMMY today that's making me >feel winded and anxious, and numb with pain and exhaustion: Ivan , Hi My name is Nancy. I am 38 with Multiple system atrophy. you don't want to go ther at this moment. I think what you need to do is find somemore aides. DO you hav a local paper? Maybe place an ad in it. Being in a nursing home is scary for a young person. But as you will find your first nor second aide will be your last. Excuse the briefness of the letter. Just wanted you to know that some people do listen, Nancy > >1. Caregiver #1 calls me a "FAGGOT" in public when I ask for help, when >my handwriting trailed off while filling out a form in an office. I had >to release him from further duty (I am a gay man who is >"out-of-the-closet "). This name-calling was a horrible PUBLIC act. > >2. Caregiver #2 announces at 8 AM that she is moving to Hawaii in 6 >weeks--and meanwhile last night, we froze our bottoms here wih wind >chill; > >3. Caregiver #3, who said all along she would move into my reconstructed >home as a live-in companion changes her mind, and tells me at 6:30 PM >that she'd rather not live with me. > >I wonder what the Parkinson's Monster did to CG #3. I am beside myself >with anxiety. The fear of dependency, institutionalization and decline >jUMPS out of nowhere. I thought i had buried this fear, but NO, NO it's >BACK!! > >Feeling very, very blue and battered, > > >IVAN S. 47/10 but feeling like 547/510 > > --