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DON, IT BOTHERES ME THAT YOU FEEL ASHAMED TO ASK FOR HELP WITH SOMETHING OVER WHICH YOU HAVE NO CONTROL. I WISH I HAD AN ANSWER FOR YOU BUT I AM ONLY 2 YEARS WITH THIS DISEASE AND STILL HAVE VERY MILD SYMPTOMS. HOPEFULLY SOMEONE ON THIS LIST WILL BEABLE TO HELP YOU. I SEND YOU A HUG AND SUPPORT. SMILE IT CAUSES LESS WRINKLES. SUE WHITMORE