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Leslie Van Dover wrote: > > From: Parkinsn List Study Group; McMaster University > School of Nursing,Hamilton, Ontario, Canada; Sheryl > Boblin-Cummings Ph.D., RN; Dauna Crooks D.N.S., RN; > Barbara Patterson; Leslie Van Dover Ph.D., RN; Mary > Fawcett, M.H.Sc., RN. > > We have been looking at messages from the Parkinsn > List archives to develop an understanding of how people > use the list and its value to them. From this, we have > some ideas about "what is going on on the List?". We > would now like to hear directly from list members about > your experience with the Parkinsn List. > > We will be posting some questions to the List over > the next few weeks; your answers will help us to better > understand your experience and to interpret it to > others. You can choose to respond to these questions > or not. If you share your expertise and experience > with us, we will be grateful. It's important for us to > hear from you IN YOUR OWN WORDS. If you find it too > difficult to respond or are not interested, that's OK. > > The questions will be posted at weekly intervals. > You can respond to some questions and not others, as > you wish. You can respond "on list" or privately to: > Leslie Van Dover at: [log in to unmask] > > From reading the archives, we think that one of > the main things that goes on in the Parkinsn List is > something we call "connecting". By connecting, we mean > sharing a part of our lives with each other, creating a > sense of togetherness. > > For example, people can "connect" with: > other people who are having similar experiences; > ways of dealing with PD in everyday life; > information about PD and its symptoms and treatment; > and ways of taking action to improve the situation for > themselves and others. > > 7. Do you think "connecting" is one of the main > things that is happening on the Parkinsn List? > > 8. Is connecting happening for you on the Parkinsn > List? If it's not "connecting", how would you describe > what is happening for you? > > 9. If something is going on on the Parkinsn List that > is MORE IMPORTANT to you, what is it? > > Leslie Van Dover > McMaster University School of Nursing > [log in to unmask] for the third time. Having trouble with computer. 7, Yes 8, No, more the knowlege.9, Better understanding of the issues that patients that patients and family face. More insight.