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At 07:45 PM 7/2/97 -0700, you wrote: > > >Hi, >My name is Bill Nowell,(57/2). I have received a list of names and >E-mail listings. I am trying to contact you and everyone else interested >to establish some type of Parkinson's Support Group communications >network in Washington. I happen to believe that the primary reason that >only two of our Congressmen, at this time, have co-sponsored the Udall >Bill is because we have not effectively communicated and concentrated our >total effort and energy on those representatives who are not on board. I >think that our representatives want to do the right thing, but we have to >tell them what that really is. I think that it is great that Senator >Patty Murray and Slade Gorton, along with Congressman Norman Dicks and >Jim McDermott have done the right thing. Unfortunately, the remaining >representatives (in my opinion) haven't. It is hard to understand why, >during the last Congress Jennifer Dunn (8th Dist) was a cosponsor (HR >1462), but she hasn't signed up yet this year. If there are any of her >constituents out there reading this, it might help if she were reminded >that we need her support again. Let's help Jennifer and all of our >representatives who have not cosponsored the Udall Bill by reminding them >we and their voters are counting on them. > >I am going to see if we can establish a list of Parkinson's Support >Groups around the state. We will then be able to coordinate and be more >effective. I think it would be fantastic if every support group in the >state received a copy of every groups newsletter. This would certainly >educate and open up the lines of communications. There are so many of you >doing such great things that we could all use if we only share the >information and knowledge. I will be more than glad to act as the point >of contact and >would ask you to send me your comments, suggestions and recommendations >concerning this undertaking. I am sure that there are many of you that >are more qualified to do this than me and if you step forward I will >assist you as much as possible. In the meantime I will plug on because >there is no time to loose in our battle. > >Some of the questions I have are do you belong to a Parkinson's Support >Group, where is it located? I do not belong to a PSG. Are you a veteran, if so, which branch of >service? I am not a veteran. Do you have contact and communications with other groups? I do. However, nothing to do with health or politics. Is >there someone who has E-mail capability to act as a Network Point of >Contact (POC)? What does a POC do? Is there a telephone number of FAX available? I have a FAX. When and >where do you meet, approximately how many members do you have? Do you >have contact with your congressional representatives? Only when I'm angry. As you can see >there are a multitude of questions, but we can make this happen and make >sure that the Udall Bill is passed. There is a great deal of help >available from the NPF, PAN, APDA and others. Let's make our WA >Parkinson's voice be heard loud and clear around the state and into the >chambers of congress. Okay, what's the next step to getting the Udall Bill passed in WA state? Sharon ([log in to unmask]) > If we don't make it work and get the Udall Bill passed then who will? I >look forward to hearing from you, reading your comments and suggestions >and making our undertaking a total success. Let's make "The Fighting >Flame" Burn Brighter in Washington. > >Bill Nowell >[log in to unmask] >(360)412-0950 > > >