 |
 |
Bill's ideas for coordinating action through Washington state support groups is exciting. Is anybody else doing this in other areas? I am relatively new at all this and just finding my way around. Looking for models and ways to plug in. Emily Jackson CG Jim 69/1 [log in to unmask] >At 07:45 PM 7/2/97 -0700, you wrote: >> >> >>Hi, >>My name is Bill Nowell,(57/2). I have received a list of names and >>E-mail listings. I am trying to contact you and everyone else interested >>to establish some type of Parkinson's Support Group communications >>network in Washington. I happen to believe that the primary reason that >>only two of our Congressmen, at this time, have co-sponsored the Udall >>Bill is because we have not effectively communicated and concentrated our >>total effort and energy on those representatives who are not on board. I >>think that our representatives want to do the right thing, but we have to >>tell them what that really is. I think that it is great that Senator >>Patty Murray and Slade Gorton, along with Congressman Norman Dicks and >>Jim McDermott have done the right thing. Unfortunately, the remaining >>representatives (in my opinion) haven't. It is hard to understand why, >>during the last Congress Jennifer Dunn (8th Dist) was a cosponsor (HR >>1462), but she hasn't signed up yet this year. If there are any of her >>constituents out there reading this, it might help if she were reminded >>that we need her support again. Let's help Jennifer and all of our >>representatives who have not cosponsored the Udall Bill by reminding them >>we and their voters are counting on them. >> >>I am going to see if we can establish a list of Parkinson's Support >>Groups around the state. We will then be able to coordinate and be more >>effective. I think it would be fantastic if every support group in the >>state received a copy of every groups newsletter. This would certainly >>educate and open up the lines of communications. There are so many of you >>doing such great things that we could all use if we only share the >>information and knowledge. I will be more than glad to act as the point >>of contact and >>would ask you to send me your comments, suggestions and recommendations >>concerning this undertaking. I am sure that there are many of you that >>are more qualified to do this than me and if you step forward I will >>assist you as much as possible. In the meantime I will plug on because >>there is no time to loose in our battle. >> >>Some of the questions I have are do you belong to a Parkinson's Support >>Group, where is it located? >I do not belong to a PSG. Are you a veteran, if so, which branch of >>service? I am not a veteran. Do you have contact and communications with >other groups? I do. However, nothing to do with health or politics. Is >>there someone who has E-mail capability to act as a Network Point of >>Contact (POC)? What does a POC do? Is there a telephone number of FAX >available? I have a FAX. When and >>where do you meet, approximately how many members do you have? Do you >>have contact with your congressional representatives? Only when I'm angry. >As you can see >>there are a multitude of questions, but we can make this happen and make >>sure that the Udall Bill is passed. There is a great deal of help >>available from the NPF, PAN, APDA and others. Let's make our WA >>Parkinson's voice be heard loud and clear around the state and into the >>chambers of congress. > >Okay, what's the next step to getting the Udall Bill passed in WA state? >Sharon ([log in to unmask]) > >> If we don't make it work and get the Udall Bill passed then who will? I >>look forward to hearing from you, reading your comments and suggestions >>and making our undertaking a total success. Let's make "The Fighting >>Flame" Burn Brighter in Washington. >> >>Bill Nowell >>[log in to unmask] >>(360)412-0950 >