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Dear Ida, Pat, Donna, Marty, Robert and David
Thanks for reply Ida - I do not say much on the list but can assure you I
have a file folder full of converstion re diphasic dyskinesia from the
past year.  I have decided in my unscientific way that everyones med sch
is individual - thats what makes this dyskinesia so frustrating.
Ida, my doctor is a PD specialist (same one as the Schwindlers) at KU med
center - I like him very much -he agrees about the end of dose dys but I
also have peak dose at times. He asked me if I wanted to go into a drug
study for tolcapone and that is why I am taking Permax. Half of us were
randomized to permax and the other half to tolcapone - and I got Permax.
I will be able to try the tolcapone after 12 weeks.  I can't really tell
about the permax - haven't found the right balance with sinemet.
Lately my upper arms especially ache constantly -is that dystonia - I
attributed it to rigidity trying to stop the dyskinesia. I know stress
affects dys but now wonder about cafeine.
Don't know if any of this makes sense but keep your messages coming.
They help.
Rosemary



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Rosemary Paul
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Community Services  x3919
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