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Bravo Marling! It is so true that people's understanding of the disease is very superficial. I've found this to be true of our politicians, as well, even in a case where one representative's grandfather had PD--or so he said. I remember MY complete ignorance when I was dx w/PD--huh??? Even though we've had some publicity here, and in our extended metro-area there are numerous support groups, I think I'll try the letters to the editor route as well. You've had such a good response to yours, I'd love to have a copy as a model. Is that ok? BTW, I visited your web page. Looks good! Barbara Blake-Krebs [log in to unmask] << Sat, 12 Jul 1997 06:53:46 -0400 Marling McReynolds <[log in to unmask]> It seems that since my diagnosis everyone around me asks me questions. I am amazed at how little they know about PD, and how many things they think they know that just are not so. I wrote a letter to the editor in our local paper explaining the basics about PD and about the Udall bill. It came out on Monday and between then and now (Friday night) I have had dozens of people comment that they learned a lot from my letter. They had no idea of the truth of PD. And, some of them even let me know that they were calling Representative Riggs (R-CA) to say that he should be co-sponsoring the bill. I intend to write more for the paper on PD and other such conditions so that the general public will understand a little more when they see someone who seems "not exactly right" or learns that they or their friends are diagnosed with it. We are a small community and everyone's first reaction was to say it was so sad, and they were sorry to lose me. BUT, I'm still here and still working! I guess I just want people to understand a little better. Have any of you tried to educate your community about PD??>>