remove >November 14 Target Adjournment > >If you have already done it , please do it again. > >------------------------------ > >Date: Sat, 19 Jul 1997 15:50:09 -0400 >From: [log in to unmask] >Subject: Udall South Dakota residents > >If you are a resident of South Dakota or have family or friends there who >would be interested in helping to get the Morris Udall Parkinsons disease >Research bill HR.1260 passed please contact: > >The Honorable John Thune (R-at large SD) >506 Cannon House Office Bldg. >Washington DC 20515 > >phone 202-225-2801 >fax 202-225-5823 > >Both South Dakota Senator Thomas Daschle (D) and Senator Tim Johnson (D) are >already cosponsors. > >The Udall bill #1260 will fund $100 million per year towards Parkinson's >disease research for up to 3 years. > >I visited there office yesterday and they were not aware of having had any >contact from residents. > >------------------------------ > >Date: Sat, 19 Jul 1997 16:13:37 -0400 >From: Judith Richards <[log in to unmask]> >Subject: importance of specialists... > >I agree with Mary. Yesterday my husband and I drove for three hours to meet >a new (to me) Movement Disorder Specialist. Our only such specialist here in >London moved to Vancouver last September. I can't emphasize enough how >important it is to find someone who understands the intricasies of >Parkinsons, and is willing to take the time to discuss them. This man seems >so caring...I feel like I've been given a new lease on life. :) > >Judith <[log in to unmask]> > >>>Mary Rack wrote: >>> Also, there is widespread agreement that it's VERY impt for a PWP >>> (person with PD) to see a movement disorders specialist or a >>> neurologist who specializes in PD. Folks in isolated areas often make >>> long journeys once or twice a year to consult with such docs and find >>> it worthwhile. > >------------------------------ > >Date: Sat, 19 Jul 1997 16:22:57 -0400 >From: "Charles T. Meyer" <[log in to unmask]> >Subject: Re: Antw: Re: Restlessness > >Ida, > >Most of my books are in my office (which I have been to about twice in >the past 3 months) so my answers to your questions are from memory. In >fact I am not sure whether it is spelled "akathesia", "akethesia", or >"akithesia". > >The descriptions of the symptom are as has been described by others- an >"antsy" feeling (like ants are crawling inside your skin". It is a >feeling that one has to get up and walk around or pace. It differs from >dyskinesia in that in dyskinesia the movements are involuntary but can >be surpressed with difficulty while in akathesia the movements are >totally voluntary but driven by a subjective feeling that is hard to >resist. The psychiatric analagy would be a compulsion to was one's >hands- as the voluntary action is resisted the inner distress becomes >greater. > >Most of the neuroleptic drugs - the phenothiazines (such as >chlorpromazine or perphenazine) or buterophenones (such as haloperidol) >can cause akathesia. > >I hope this is helpful. > >Charlie > >Ida Kamphuis wrote: >> >> Charles, >> >> I did not know the concept of akathesia and neither can I find any >> description. >> because it seems to have something in common with my wearing off >> dyskinesia I >> am interested to have a desciption of the symptom and the meds who >> might >> trigger it. I know it is difficult to decribe things like that and to >> determine >> the amount of resemblance visual cues are more usefull. >> I looked for the meaning of the word and I found the Greek word >> "kathemai" >> which means to sit quiet. Akathesia might mean not being able to sit >> quiet. >> That seems an understatement when it touches on dysk. >> The partial similarity of my dysk. and the restless leg syndrome has >> never >> impressed me much, because the dysk. does not exist without leva-dopa. >> >> Ida Kamphuis >> Holland >> >> > Bruce & Phil; >> > >> > Actually Phil is probably more correct in labeling what he >> experiences >> > as akathesia. As a psychiatrist I have run into it quite a bit in >> the >> > use of dopamine blocking neuroleptic drugs which at the same time >> can >> > produce dystonia + cogwheel rigidity. I have not run into it with >> PD >> > but I presume it occurs since the neuroleptics produce a >> > pseudoparkinsonism. What medications were you taking when it >> started. >> > Are you sure it is not dyskinesia- which has a lot of similarities >> to >> > akathesia)? >> > >> > CHARLES T. MEYER, M.D. >> > MADISON, WISCONSIN > >-- >********************************************************** >CHARLES T. MEYER, M.D. >MADISON, WISCONSIN >********************************************************** > >------------------------------ > >Date: Sat, 19 Jul 1997 16:28:37 -0400 >From: Bruce Warr <[log in to unmask]> >Subject: Re: Mental fog > >-->>>>>>> Next Section <<<<<<< >Content-Type: Text/Plain; charset=US-ASCII > >Mental confusion is cited in the liturature as being one of the >side-effects of many drugs used in the treatment of PD. I used to >experience it (along with nausea and other side-effect) fairly >frequenly, but as time has passed, the side-effectsd disappeared >(sometimes, it seemed, along with the main-effects!!). > >The most extreme case I encountered was when I lost my medicine and >went for two days without. I got a new Rx on noon of the 3rd day and >took my normal dosage. With-in three hours I was not only mentally >fogged in, I was suffering from a total disconnect between objects >and labels. > >For instance, if I saw a three-sided, closed object, I knew that I >knew the name for it but could not remember what it was.. At the >same time, (I would realize later), in my label memory bank would be >one called "triangle", but the association between the object and >its label was missing. I don't even remember whether or not I >remembered my name. The only thing that kept me from screaming up >the walls was a strong sense of self-identity--I was still me even >if I didn't know who me was. > >I don't know if there is a medical term for this condition, but I >think of it as being a mental disassociation. Most people have >experienced very minor instances of this when they cannot remember >the name of something ("my mind just drew a blank") > >Bruce >55/9 >Sinemet CR and Mirapex > >------------------------------ > >Date: Sat, 19 Jul 1997 16:36:10 -0400 >From: "Charles T. Meyer" <[log in to unmask]> >Subject: Hospitalization > >Listfriends (or list sibs) > >On Monday (pending bed availability) I will be entering >Rush-Presbyterian-St. Lukes Hospital in Chicago to switch from >bromocryptine and sinemet to pramipexole and sinemet. Hopefully I will >regain my ability to walk ( which I lost about 3 months ago) without >freezing every other step. I also will be receiving rehab therapy which >I badly need. > >The last posts I will be able to answer will be able to respond to will >be tomorrow's (except for you Aussies) > >I'll be back in 1-2 weeks. > >Charlie >-- >********************************************************** >CHARLES T. MEYER, M.D. >MADISON, WISCONSIN >********************************************************** > >------------------------------ > >Date: Sun, 20 Jul 1997 17:23:13 -0400 >From: Kathy Kunz <[log in to unmask]> >Subject: Re: MSA diagnosis > >My week for mistakes. I reread the material John Cottingham sent me >about MSA and it seems I misunderstood it the first time. MSA >encompasses Shy-Drager Syndrome, striatonigral degeneration and >olivopontocerebellar atrophy (SDS, SND, & OPCA). I thought originally >that it was a separate disease from these three and that there were yet >three more variants of it--how many flavors can we take? I still seem to >lack almost all the distinguishing features of those three--back to >researching. > >Meanwhile, I'd still like to hear from any MSA's among you about anything >that helps. Thanks. > >Kathy Kunz ><[log in to unmask]> > >------------------------------ > >Date: Sat, 19 Jul 1997 17:34:23 -0400 >From: [log in to unmask] >Subject: Re: speed of onset > >Kathie Tollifison, >Yes, where are they getting all that energy? I keep forgetting, I can't do >the things I used to. I would guess the super exercisers just haven't been >hit by the >fatigue fairy yet. I think of how nice it would be to take a walk or do some >shopping or volunteer work and then I get up on my feet and nearly fall down > from my bad balance. Everything tires me out. >I was playing tennis two years ago and worked a full time job. It's >impossible now. Glad I didn't complain about all those PDrs that weren't >trying and needed to stay busy! Ha. I sleep 8-9 hours a night too. > Everybody is affected differently. > >Patricia >60/3 yrs. > >------------------------------ > >Date: Sat, 19 Jul 1997 17:42:41 -0400 >From: "Edie Luther." <[log in to unmask]> >Subject: Re: Hospitalization > >I wish you the best of luck, Charlie > >Edie Luther > >------------------------------ > >Date: Sat, 19 Jul 1997 17:43:06 -0400 >From: Joao Paulo Carvalho <[log in to unmask]> >Subject: Re: speed of onset > >[log in to unmask] wrote: > >> Kathie Tollifison, >> Yes, where are they getting all that energy? I keep forgetting, I >> can't do >> the things I used to. > >Have you checked the possibility that it may be caused by some side >effect of some med you have been taking ? > >Regards, > > +----| Joao Paulo de Carvalho |------ + > | [log in to unmask] | > +--------| Salvador-Bahia-Brazil |------+ > >------------------------------ > >Date: Sat, 19 Jul 1997 17:49:51 -0400 >From: Dick Swindler <[log in to unmask]> >Subject: Re: Hospitalization > >Charlie - > >Our hearts are with you during your upcoming hospitalization. You'll be >sorely missed while you're off line. We hope to hear from you soon, and to >learn that the pramipexole has been the answer for you. Warmly, Margie and >Dick Swindler > >------------------------------ > >Date: Sat, 19 Jul 1997 17:54:40 -0400 >From: Germaine <[log in to unmask]> >Subject: Re: importance of specialists... > >Hello Judith, > >I'm so happy to hear that you've found a caring doctor. And you sound so good! > >Love, >Germaine > >At 04:13 PM 7/19/97 -0400, Judith Richards wrote: >>I agree with Mary. Yesterday my husband and I drove for three hours to meet >>a new (to me) Movement Disorder Specialist. Our only such specialist here in >>London moved to Vancouver last September. I can't emphasize enough how >>important it is to find someone who understands the intricasies of >>Parkinsons, and is willing to take the time to discuss them. This man seems >>so caring...I feel like I've been given a new lease on life. :) >> >>Judith <[log in to unmask]> > >------------------------------ > >Date: Sat, 19 Jul 1997 18:22:30 -0400 >From: [log in to unmask] >Subject: Re: clinical depression [cd] defined > >Janet, >That was you that had the informative letter on depression. I was going >through the list mail and thought it looked interesting and it was. How much >I would like to stop taking my anti-depressant but I'm somewhat pre-disposed >to feeling low, >after talking with my brother about he and I and the relatives. >I'm glad you have found some of the answers. Since I've retired, a weight >has been lifted from my chest. In fact I don't know how I lasted as long as >I did. Getting up at six, driving 25 miles, working with Special needs high >school students, trying to stay helpful and positive after hearing their sad >stories- no breakfast. holding a job after school, (so they fell asleep in >class) abuse, dsylexia, learning disabilities, need for glasses, pregnancy, >etc.,etc. >My adopted daughter was diagnosed with a bi-polar disorder. She is like two >different people when she's up or down. Doesn't always take her medicine >either. >How is Stubby? Any more dreams when looking out the window? My Bruce got so >upset by the rug cleaners coming in the house last week I felt movement in >the bottom of the recliner I was sitting in. Yes, it was my brave kitty, >moving around underneath me. I was afraid to move, thinking I'd squeeze him >flat, but he was alright. He came out when they left and decided to stay on >the top of my lap this time. >Will you be taking the Mirepex? I'm supposed to get a prescription soon. > Hope springs eternal! > >Patricia >60/3 yrs. > >------------------------------ > >Date: Sat, 19 Jul 1997 18:35:13 -0400 >From: [log in to unmask] >Subject: Re: speed of onset > >Joao, >I keep asking my neurologist why I'm so tired all the time. She explains my >fatigue as a symptom of PD. I am taking Sinemint CR, Amantadine, and Zoloft. >Thanks for your reply. > >Patricia >60/3 yrs. > >------------------------------ > >Date: Sat, 19 Jul 1997 18:35:46 -0400 >From: Arthur Hirsch <[log in to unmask]> >Subject: Re: Hospitalization > >Charlie, > >I had never read much about the efforts going re Parkinsonism at >Rush-Presbyterian-St. Lukes Hospital in Chicago, but last week I was among >those priveleged to hear Jeffrey Kordower, Ph.D., of subject hospital speak >at the Parkinson's Public Policy Forum in Washington, DC. Not only was his >presentation arguably the best of many excellent presentations, but he took >time off later to visit Capitol Hill with our advocates as well. > >If this man's care speaks for the care of the hospital, you are in >excellent hands. It appears that he is in research, not in patient care, >but I suggest that you make it a point to meet him if you can. > >My wish is for a recovery so complete that you won't have the time for this >list that you have lavished on us in the past months - a loss for the list, >but a gain for you. > >Art > > >At 04:36 PM 7/19/97 -0400, you wrote: >>Listfriends (or list sibs) >> >>On Monday (pending bed availability) I will be entering >>Rush-Presbyterian-St. Lukes Hospital in Chicago to switch from >>bromocryptine and sinemet to pramipexole and sinemet. Hopefully I will >>regain my ability to walk ( which I lost about 3 months ago) without >>freezing every other step. I also will be receiving rehab therapy which >>I badly need. >> >>The last posts I will be able to answer will be able to respond to will >>be tomorrow's (except for you Aussies) >> >>I'll be back in 1-2 weeks. >> >>Charlie >>-- >>********************************************************** >>CHARLES T. MEYER, M.D. >>MADISON, WISCONSIN >>********************************************************** >> >> >Arthur Hirsch [] [log in to unmask] [] Lewisville, TX > ____________________________________________ > > Always Remember This: > Happiness Is Right, So Choose Happiness > ____________________________________________ > >------------------------------ > >Date: Sat, 19 Jul 1997 16:17:16 -0400 >From: jhstarr <[log in to unmask]> >Subject: Re: GH3./OPC/SJW > >[log in to unmask] wrote: >> >> In a message dated 97-07-12 16:23:14 EDT, [log in to unmask] (jhstarr) >> writes: >> >> << I would suggest St.John's Wort before the GH3, if you want a >> natural product. There is more known about SJW.-- BY THE WAY-- If any of >> you listmates have tried SJW, I would be interested in knowing your >> results. Jerry Starr >> >> >> >> GH3 sounds a lot like OPC as far as the things it has been reported to >> help..I've never heard of GH3, where can you find it? Also I've been looking >> for SJW, but ever since the news on 20/20 all the shelves I've looked on are >> out of it. Anyone had any luck finding it? >> >> Sue, in Mass. daughter of Rocky 7?/14 > >DEAR SUE: I realize SJW may be a little hard to find at the present >time, but keep checking at the health food stores. The GH3(Gerovital H3) >should also be available at health food stores and through mail order. >One mail order company that makes it is the Gero-Vita Co., but there are >also others. >I would reiterate that these should be taken only with your doctors >knowledge and approval. Jerry Starr, Rph > >------------------------------ > >Date: Sat, 19 Jul 1997 18:51:11 -0400 >From: "W.H. Beust" <[log in to unmask]> >Subject: pycnogenol > >My father, Walter, is 84 years old and takes Eldepryl and Sinemet. My >mother and I have experienced benefits from an antioxidant called >pycnogenol (proanthocyanidin from the Maritime pine tree) and we have >finally talked Dad into giving it a try. But he is very skeptical. He >is building up slowly, as anyone just starting out should, but says he >feels worse, not better and will stop if he doesn't start to feel better >soon. > >We know from personal experience and the experience of others, that a >"cleansing" of the body occurs when first taking this compound, and it >is not unusual for someone to feel worse at first. Loose stools are >also a common side effect. But these soon go away and, after reaching >the full dosage, the benefits start to become obvious. In my case, my >ADD-type of fuddled brain cleared and I was much more able to think >clearly. My arthritis and carpal tunnel left. I felt better than I had >in a long time. > >Dad would be much more likely to stick with pycnogenol if he knew >another PD person out there had tried it and had benefitted. But there >is a dearth of information on the subject of pycnogenol and PD. Has >anyone out there tried this? We would so appreciate an answer. > >Thank you. Audrey Beust McMurray > >------------------------------ > >Date: Sat, 19 Jul 1997 15:03:43 -0400 >From: Phil Tompkins <[log in to unmask]> >Subject: Re: Restlessness > >I found the correct spelling of the term as well as its Greek >origin. > >akathisia - from the prefix "a" meaning not (as in "atonal"), and >"kathikso", to sit down. Unfortunately, this denotes an action, >not a sensation, so it doesn't express the real meaning. > >It's frustrating not only to experience this sensation, but also to >have to describe it to people who never themselves felt it, and that >is the vast majority, a good number of doctors included. It's one of >those weird, not right sensations that we may have trouble finding >adequate words for when we are trying to say what's wrong with us. I >recall once having a different, non PD related, weird sensation (too >much insulin), which I could not describe in such a way as to convey >that there was anything wrong with me except in my imagination. > >There seem to be standard terms for describing many of the symptoms >which are subjective sensations, in this case, "restlessness" or >"akathisia", and if we don't happen to use the right words, we may >not be heard. It pays to learn and use the vocabulary of one's >condition. > >Phil T. > >------------------------------ > >Date: Sat, 19 Jul 1997 19:09:10 -0400 >From: Milton E McLain <[log in to unmask]> >Subject: Re: Hospitalization > >Good Luck, Charles! > >Milton McLain >[log in to unmask] > >On Sat, 19 Jul 1997 16:36:10 -0400 "Charles T. Meyer" ><[log in to unmask]> writes: >>Listfriends (or list sibs) >> >>On Monday (pending bed availability) I will be entering >>Rush-Presbyterian-St. Lukes Hospital in Chicago to switch from >>bromocryptine and sinemet to pramipexole and sinemet. Hopefully I >>will >>regain my ability to walk ( which I lost about 3 months ago) without >>freezing every other step. I also will be receiving rehab therapy >>which >>I badly need. >> >>The last posts I will be able to answer will be able to respond to >>will >>be tomorrow's (except for you Aussies) >> >>I'll be back in 1-2 weeks. >> >>Charlie >>-- >>********************************************************** >>CHARLES T. MEYER, M.D. >>MADISON, WISCONSIN >>********************************************************** >> > >------------------------------ > >Date: Sat, 19 Jul 1997 19:34:29 -0400 >From: Sue Whitmore <[log in to unmask]> >Subject: Re: speed of onset > >Ken, > >What exactly is DHEA? Where do you buy it and how expensive is it? Does it >interfere with PD meds? Thanks. >Sue W. 45/2 > >------------------------------ > >Date: Sat, 19 Jul 1997 16:11:47 -0400 >From: Aaron Schwartz <[log in to unmask]> >Subject: Re: Hospitalization > >Dr. Charles - > >Good luck and god speed. I shall offer a prayer for your good health >and a speedy recovery. > >"A psychiatrist is a person who will listen to you, as long as you don't >make sense." -Milton Berle > > >Stephan 53/7 > >------------------------------ > >Date: Sat, 19 Jul 1997 21:27:42 -0400 >From: Brian Collins <[log in to unmask]> >Subject: Re: question? > >On Mon 14 Jul, ((JackLyn)) wrote: >> This is such a great group, even with all the nitpicking. :) Just wanted >> to know, what do you mean when you talk about on and off times? Thanks, Jackie >> >> >> >Hello Jackie, I cannot see a reply to your question, so I thought I would >write one. > >In the early stages of PD, things tend to happen slowly and progressively, >and it is sometimes difficult to see that there are in fact two areas of >operation: 1: Where you have taken insufficient medication (Sinemet or >Madopar), and are showing the classic Parkinson's tremor (or stiffness >etc - whatever is your particular response to PD) This is defined as the >OFF state. > >With the passing years, as it becomes more and more difficult to find a >suitable dosage of Sinemet/Madopar which will relieve the tremor (etc) >symptoms without at the same time triggering symptoms which are >characteristic of the overdosed condition . That is, random uncoordinated >movements of anything up to and included1ng the whole body, or >sometimes just very stiff muscles. Doctoes and patients alike tend to >think of the whole setup as one where it is like a switch, and you are >either under dosed, or ovwrdosed a lot of the time, and you can slip from >one condition to the other, just like flicking a switch switch. > >The good news is that I have found it possible to effectively hover in the >area between under and overdosed conditions, with the result that (almost) >normal functioning can be achieved. Some of you may know that I wrote a >computer program to enable me to find that balance. I can supply more >information to interested people - just let me know. > > > > >-- >Brian Collins <[log in to unmask]> > >------------------------------ > >Date: Sat, 19 Jul 1997 22:01:49 -0400 >From: Barbara Mallut <[log in to unmask]> >Subject: FW: Hospitalization > >Charlie... > >Break a leg! Hmmm....(thinking).... naw, that's wrong. HEY-score one for >the Gipper! Hmmm... (thinking)... WRONG! Uhhhh... knock 'em dead? Wrong >again... OH HECK! TONS of success, Charlie! <smile> > >BIG huggle atcha... > >Barb Mallut >[log in to unmask] >[log in to unmask] > >-----Original Message----- >From: Parkinson's Information Exchange On Behalf Of Arthur Hirsch >Sent: Saturday, July 19, 1997 3:36 PM >To: Multiple recipients of list PARKINSN >Subject: Re: Hospitalization > >Charlie, > >I had never read much about the efforts going re Parkinsonism at >Rush-Presbyterian-St. Lukes Hospital in Chicago, but last week I was among >those priveleged to hear Jeffrey Kordower, Ph.D., of subject hospital speak >at the Parkinson's Public Policy Forum in Washington, DC. Not only was his >presentation arguably the best of many excellent presentations, but he took >time off later to visit Capitol Hill with our advocates as well. > >If this man's care speaks for the care of the hospital, you are in >excellent hands. It appears that he is in research, not in patient care, >but I suggest that you make it a point to meet him if you can. > >My wish is for a recovery so complete that you won't have the time for this >list that you have lavished on us in the past months - a loss for the list, >but a gain for you. > >Art > > >At 04:36 PM 7/19/97 -0400, you wrote: >>Listfriends (or list sibs) >> >>On Monday (pending bed availability) I will be entering >>Rush-Presbyterian-St. Lukes Hospital in Chicago to switch from >>bromocryptine and sinemet to pramipexole and sinemet. Hopefully I will >>regain my ability to walk ( which I lost about 3 months ago) without >>freezing every other step. I also will be receiving rehab therapy which >>I badly need. >> >>The last posts I will be able to answer will be able to respond to will >>be tomorrow's (except for you Aussies) >> >>I'll be back in 1-2 weeks. >> >>Charlie >>-- >>********************************************************** >>CHARLES T. MEYER, M.D. >>MADISON, WISCONSIN >>********************************************************** >> >> >Arthur Hirsch [] [log in to unmask] [] Lewisville, TX > ____________________________________________ > > Always Remember This: > Happiness Is Right, So Choose Happiness > ____________________________________________ > >------------------------------ > >Date: Sat, 19 Jul 1997 23:11:53 -0400 >From: Camilla Flintermann <[log in to unmask]> >Subject: Re: Hospitalization > >Good luck with the hospitalization, Charlie Meyer--and hurry back! >We need you and will miss you! > >Camilla Flintermann, CG for Peter, 78/7, Oxford,Ohio >[log in to unmask] >* * * * * * * * * * * * * * >"Ask me about the CARE list for PD caregivers!" >* * * * * * * * * * * * * * > >------------------------------ > >Date: Sun, 20 Jul 1997 15:17:36 -0400 >From: ron d <[log in to unmask]> >Subject: ops > >Dear Barbara & List Members, >As a new member, let me introduce myself. >My name is Ronnie Discombe and I was diagnosed as having >PD in Feb 1993. I live in Melbourne, Australia. >Only during the past year have the ops for PD been performed >in Australia. Therefore there is very little follow-up >on the results after a couple of years has passed by. >Has anybody on the list had the operations and could pass on any >information on this subject? >Ronnie Discombe. [log in to unmask] > >------------------------------ > >Date: Sat, 19 Jul 1997 23:21:05 -0400 >From: Camilla Flintermann <[log in to unmask]> >Subject: Peter's new symptoms > >Friends, maybe someone can tell us if they have had similar symptoms >to a couple which really are bugging Peter of late: >Spasms of tongue biting--different from the unconscious chewing of >the tongue that he has had for months, these are sharp, sudden bites that >hurt, and even wake him up at night when it happens in his sleep. It seems >somewhat comparable to a jerk or dyskinesia. The sideways,rhythmic jaw >movement which he developed when there was a slight increase in Sinemet, >seems to have disappeared when I cut back to the lower dose. (The increase >was only from 20/200 (2-10/100s) to 25/250 in 3 hrs,but that may have put >him,finally, overthe edge to dyskinesia. > >The other symptom is different from a regular PD tremor--which he has >almost none of--and is a violent trembling or shaking hard to control, >which occurs when he first rises from a seat, and gets worse if someone >grabs and tries to help/hold him. It's a "wild bouncing up and down" which >makes him panicky, and even more so if anyone tries to hold onto him. It's >scary to watch, as it seems he will fall over--but it soon stops if he can >get control of it himself, stabilize with a walker, etc. So far, he hasn't >fallen, however. > >I have posted about our experience with Aricept, which unfortunately >didn't help him, and apparently added insomnia,nausea, and anorexia to >his symptom life,till we stopped it. Has anyone else had this experience with >this med, whichso many have found helpful? He's now eating again a bit better >and I hope will regain at least some of the 20 lbs he lost! > >Any suggestions, comments, will be of interest--we see his neuro on >Monday, and will ask for a Mirapex RX . > >Camilla Flintermann, CG for Peter, 78/7, Oxford,Ohio >[log in to unmask] >* * * * * * * * * * * * * * >"Ask me about the CARE list for PD caregivers!" >* * * * * * * * * * * * * * > >------------------------------ > >Date: Sat, 19 Jul 1997 23:14:40 -0400 >From: Baldwin Robertson <[log in to unmask]> >Subject: Computer program for (almost) normal functioning > >Brian, >You said: >"The good news is that I have found it possible to effectively hover in the >area between under and overdosed conditions, with the result that (almost) >normal functioning can be achieved. Some of you may know that I wrote a >computer program to enable me to find that balance. I can supply more >information to interested people - just let me know." > >Yes, I would be very interested. > >Baldwin Robertson > >------------------------------ > >End of PARKINSN Digest - 19 Jul 1997 >************************************ >