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Marling,

The speed of onset statistic is a tough one and it will be
interesting to see the responses here. It is definitely one
that us inquiring PD newbies want to know. I posed this question
to my initial neuro about six months ago. He at first refused to
answer but you know me. I finally annoyed him to the point that he
gave me some case histories.

One man diagnosed at my age was fully functional with meds for about
12 years. He golfed regularly and continued to work. He required a
Palidotomy after 12 years and was no longer able to work.

Another gentleman was diagnosed at age 60 and was disabled in
about 3 1/2 years. A family friend of my wife is in her early 70's
and has been using meds for over 25 years. My wife didn't even know
she had PD. When she heard about my diagnosis, here response was no
problem.

My new neuro (I'm the guy whose neuro left town) is big on starting out
with a meds program that will extend as long as possible their
effectiveness. I think this translates to what the neuros decided was the
best combination at their last conference. Anyway, my new neuro has
a pretty good track record so 'bull head' here will probably need to listen.
She is very big on regular exercise to properly tone muscles and maintain
strength. She indicated that this is the one major thing we must do to
effectively cope with the symptoms.

I think the cramping you are feeling is dystonia. I have the same thing
in my right forearm. She said that exercise is very important to help
relieve this type of symptom. Walking with an exaggerated arm swing is
important using a power walking style.

Well, speaking of exercise, I think I'll go down and use my ergometric
rowing machine. I just hope the dust from the flywheel doesn't aggrevate
my allergies too badly.

Phil Gesotti 47/1+  [log in to unmask]

P.S. What is your age and years since diagnosis. I've lost the bubble.