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From: Tebay, Wendy M on Thu, Jul 17, 1997 11:00 AM Subject: speed of onset To: PD Listserv Postings I was glad to read Russ Ahlstrom's posting re: his 32 year experience with pd. I don't view people who survive that long with pd (and some of them quite well too) as having a fatal disease. I believe their experiences can become the norm, rather than the exception. Personally I'd be more interested in research that unlocks their secret(s), rather than the research which seems to only focus on the negative experience of pd. I know I intend to be one of the exceptions to this stupid disease. I have been diagnosed now for over six years now (altho' it's really 8+) and I still play soccer & volleyball, just moved across country, and am going to start my own business. It's not always easy, by any means, but I am happy with my life and am making even bigger plans now that I've got pd. Actually, I am quite excited about personally blowing away all previous held perceptions about the progression of pd and what supposedly is in store for me. I am not a victim! Wendy Tebay