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dear syber-siblings

for those who don't know me very well
i use the term 'siblings' consciously and deliberately
this group has great importance to me as an extended family

i live on an island with a population of 55,000
and have never met another parkie
let alone a support group
so 'you lot' are it

since october 1995
when i was privileged to join this ethereal family
i have:
posted daily at times
posted infrequently at times
lurked for months at a stretch
all depending on my own circumstances and my own energy levels

i deal with parkinson's disease [pd]
as well as with clinical depression [cd]
and at times, i think cd is the harder battle

when my thinking
is bright and clear
my sense of self is strong
my sense of humour is at its gooffiest
my inherent natural joy in life is in top form
and my tolerance for the actions of others is at its most generous

when i am caught
in the Grey Cloud [GC]
of Clinical Depression [CD]
or other Similarly Laden Internalized Modes of Expression [SLIME!]

my thinking becomes
consistently negative
my sense of self is muddied
the joy in life doesn't exist
[and never did, and never will return]
there is little in this wide world and dark to laugh at
and there are very few people out there
[a] who are worth my attention and
[b] who would ever feel i was worthy of their attention.

this kind of murky thinking grows slowly and insidiously
and feeds on itself in a slippery downward spiral
i know it intimately

the hardest work i've done in the past few years
is learn to recognise it
for what it is

once i realize what's going on
a little crack appears in the overhead gloom
and then it's 'just' a matter of consciously working
at reversing the downhill slide by whatever means necessary

for me
the epiphany
in this struggle was
suddenly learning that i had a choice in my emotional reactions
that these dank cobwebby veils of negative emotion
were hanging all around me
because i allowed them to

that is not to say
that i'm 'guilty' of causing my own murk
rather
i comprehend that i have a conscious choice
and in using that choice
there is strength

our society's brain-washing-staining includes a chronic tendency
to look at things through a lens of confrontation
life and its challenges are tackled
from the narrow perspective of
either/or
all or nothing
my way or the highway
if something's wrong, someone must be blamed
and on and on

from a wide angle perspective
i believe this approach results
in global confrontations like bosnia, belfast, et al

from a close-up perspective
i believe this approach results
in personal problems like family estrangement
i know that intimately too.

i have an inherent distaste for any kind of censorship
and would resist any attempt to restrict
my own voice

where am i going with all this?

choice - i can choose how i feel and react to circumstances and individuals
confront - all of society [including me] are conditioned to confrontation
voice - i demand the right to my own voice

if my re-actions are coloured by my negative choice
then i'm doomed to confrontation and censorship as coping techniques

if my re-actions are coloured by my positive choice
then the conditioning comes under question and voices are heard

i had a hard time
wrapping my brain around the idea
that i have a choice in how i react to things
including how i react emotionally

this helped:

~~~~~~

As novices we think we're entirely responsible for
the way people treat us
I have long since learned that we are responsible only for
the way we treat people

                Rose Lane
~~~~~

i think this concept has been wonderfully demonstrated
by the incredible people on this list
in the range of re-actions posted
in regard to jeanne's message 'get a clue'

jeanne was obviously 'spilling' a lot of anger and frustration
as a 'receiver' i could have reacted with
anger
and interpreted her words as out of line and insulting
or fear
and interpreted her words as a personal attack
or acceptance
and interpreted her words as her opinion, nothing more, nothing less
or empathy
and interpreted her words as her expression of frustration

whatever
but it is my choice now
i'm not at the mercy of the tempest
no one or thing can 'make' me feel anything
my emotions are my own

i can choose to see the cup as half empty
and worry about what i don't have
or
i can choose to see the cup as half full
and enjoy what i have

it's still the same cup
but my outlook is not

i can see jeanne's or ken's or whoever's messages
as annoying or as communication
they are still the same messages but my outlook is not

i can see the volume of messages on the list
as an overwhelming burden or as generous sharing
the volume is still the same but my outlook is not


janet












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Date:    Mon, 14 Jul 1997 13:54:18 -0400
From:    "Charles T. Meyer" <[log in to unmask]>
Subject: Use of the list

Listfriends:

The discussion stimulated by Jeanne's diatribe brings to mind the
discussion that  occurred around David Boots leaving the List.  David
had been an active listmember since before I joined the list in May 1995
so I accept his criticism  with much less resistance than I do
Jeanne's.  The same with Sand Rodent.  I think they point out an
inherent problem in al list of this size.  Different  people use it for
different things  and an in-group forms which unintentionally makes the
less active people feel resentful.

The volume of messages this group produces is overwhelming and I think
most of us read them selectively.  Unless one receives their list mail
in digest form non-list e-mail can easily be overlooked.  It should be
noted that the size of the list has remained constant over the past few
months in spite of the growth of the internet.  I have talked to many
people who have been so overwhelmed by the volume that they have left
the list.

Here are a few suggestions for decreased volume.  It is so easy to
answer a personal question by hitting the reply button on the browser
that many of us forget that a reply is posted for everyone even if it
has relevance only to 1 person.  Try to send replies that you think do
not have general interest directly to the individual(s).  Try to combine
short messages- especially on the same topic into fewer posts. Also as
suggested by others label in the subject line the content of the post.

I think the last time we went through this the volume decreased
considerably for a time and then drifted upward again.

I plead guilty to most if not all of the faults I have mentioned and
will be trying my damnedest to follow my own advice.

Charlie
--
**********************************************************
CHARLES T. MEYER, M.D.
MADISON, WISCONSIN
**********************************************************

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