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Camilla, How discouraging. I felt the same way last fall when our really great neurologist said maybe all we could hope for now would be transferring from bed to wheel chair and back-- that walking was asking too much. Now, it is almost a year later, and Ken is not only walking, he goes to the gym 3X a week, and as you know, his mind is clearer than it has been in years. He is on so many meds that it is hard to list them all, and he goes "off" very suddenly at about 8PM each night, but we are not where we were last fall. You never know what will help or what new treatment will come along just in time. Last year, I had read a tiny piece in the paper saying there was a new drug for SDS, and Ken was suddenly in crisis. Noone knew anything about it, and I called our mail order pharmacy who told me that it was an orphan drug available at that time only through the manufacturer. So, that's how we got it, and noone knew how to use it. Our neurologist, our internist, and I just experimented until Ken could stand up. Now the drug, Pro-amatine, is available everywhere, but our pharmacist still has never had another prescription for it. One thing I read very little about in the PD list is NADH. Does Peter take it? We thought it was very helpful when Ken started it. Now he takes so much other stuff, it's hard to know, but we hesitate to stop it. It was Dr. Birkmayer Sr. who did the early research on deprenyl and through whom Ken got deprenyl for several years. Dr. Birkmayer Jr. spoke here last month, and he really believes in NADH. Of course, he holds the American Patent on it, so he can't be considered unprejudiced. I know you will find the help you need. You are an inspiration to the rest of us, and we are all praying for the two of you. Barbara Smith, CG/Ken/69/16, SDS/5