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TO those who suffer from sleeplessness. I take trazadone, lorazapam, and paxil at bedtime. I am asleep within 5 minutes, take one trip to the potty during the night, sleep soundly and wake up refreshed in six hours. And I have wonderful dreams. Have you asked your dr for sleeping aids? John Gugel (New to y'all) At 12:00 AM 7/25/97 -0400, you wrote: >There are 9 messages totalling 246 lines in this issue. > >Topics of the day: > > 1. CALL TO ACTION--Udall (2) > 2. HP-200 > 3. Hard Times > 4. Delete THIS!. > 5. what to say for Don > 6. Don & Friends > 7. liver detox > 8. SEN. WILLIAM H. FRIST'S #s > >---------------------------------------------------------------------- > >Date: Thu, 24 Jul 1997 20:45:42 -0400 >From: "Walter O. Huegel" <[log in to unmask]> >Subject: Re: CALL TO ACTION--Udall > >[log in to unmask] wrote: >> >> IMMEDIATE ACTION! >> >> FRIDAY, July 18, 1997 >> >> Just met with the legislative staff of Senator McCain and Wellstone. The >> meeting was most productive. Attending and participating in a very >> complimentary fashion were Bill Turenne, Paul Smedberg, Ed Long, Mike >> Claeys and myself. >> >> Senator McCain would like Senator Frist of Tennessee, Chairman of the >> Senate subcommittee having jurisdiction over NIH, to hold hearings >> immediately on the Udall Bill. This would pave the way for the Senate >> Commerce committee to report the Udall Bill to the Senate floor for a >> vote, where it will pass! >> >> It would be very helpful if as many persons from Tennessee would write, >> call, and visit Senator Frist and his staff urging that he hold such a >> hearing ASAP. Remind them that the Udall bill was introduced in >> April...and hearings should be held NOW. Our efforts with Senator Frist >> with strengthen Senator McCain's hand considerably. It is also important >> for ALL persons interested in the Udall bill make their desires for these >> hearing known to Senator Frist. Work should begin this weekend....if not >> sooner. >> >> GOOD LUCK!! >Sen. Frist's E-mail, phone, fax addresses. Thanx! > >------------------------------ > >Date: Thu, 24 Jul 1997 20:47:23 -0400 >From: "Walter O. Huegel" <[log in to unmask]> >Subject: Re: CALL TO ACTION--Udall > >[log in to unmask] wrote: >> >> IMMEDIATE ACTION! >> >> FRIDAY, July 18, 1997 >> >> Just met with the legislative staff of Senator McCain and Wellstone. The >> meeting was most productive. Attending and participating in a very >> complimentary fashion were Bill Turenne, Paul Smedberg, Ed Long, Mike >> Claeys and myself. >> >> Senator McCain would like Senator Frist of Tennessee, Chairman of the >> Senate subcommittee having jurisdiction over NIH, to hold hearings >> immediately on the Udall Bill. This would pave the way for the Senate >> Commerce committee to report the Udall Bill to the Senate floor for a >> vote, where it will pass! >> >> It would be very helpful if as many persons from Tennessee would write, >> call, and visit Senator Frist and his staff urging that he hold such a >> hearing ASAP. Remind them that the Udall bill was introduced in >> April...and hearings should be held NOW. Our efforts with Senator Frist >> with strengthen Senator McCain's hand considerably. It is also important >> for ALL persons interested in the Udall bill make their desires for these >> hearing known to Senator Frist. Work should begin this weekend....if not >> sooner. >> >> GOOD LUCK!! >Sen Frist's numbers (phone, fax, E-mail) Thanks! > >------------------------------ > >Date: Thu, 24 Jul 1997 20:49:43 -0400 >From: "Walter O. Huegel" <[log in to unmask]> >Subject: Re: HP-200 > >P. Schark wrote: >> >> Wendy, >> >> I'm home from DC and read your other message. I wanted to respond to this >> one because I found fava beans in my supermarket and wanted to try them. >> However, when I got them home I couldn't figure out how to get them out of >> the shell. Any suggestions? >> >> As you can see from the other postings on the listserv, our visit was >> quite a success. The next step is to get Sen. Frist to hold hearings. >> This bill is really do-able! If all goes according to plan, maybe we can >> meet in DC next year to lobby for appropriations. >> >> Pat >Sen. Frist's numbers (phone, fax, E-mail) Thanks1 > >------------------------------ > >Date: Fri, 25 Jul 1997 00:10:55 -0400 >From: George Andes <[log in to unmask]> >Subject: Hard Times > > Several recent posts to this list have been complaints, not >complaints about the list, but complaints about our common condition, >Parkinsons. The person complaining often sounds half-apologetic about his >or her condiion. Taken all in all this list has well over 1000 PWP in >various stages of affliction, from the trembling green recruit clutching >for any word of assurance that things won't really become as bad as rumor >has it, to the grizzled and battle weary veterans who know the truth >first-hand. And yet, the number of posts complaining about our situation, >bleak as it may be, are relatively few. Are we really that brave or >stoical? > > We all know with cetainty that if we do complain we will be buried >under an avalanche of sympathetic replies, both public and personal. We >turn no one away. Yet personal physical complaints are sufficiently scarce >that I have left my self imposed silence to comment on the matter. > > One of the important messages the list and its membership >continually reinforces is that there is life after diagnosis. The world >doesn't end with the bad news. As Dolly Parton sings (with Billy Dean) >"You got me over a heart ache tonight..." She's singing about a romantic >crisis, but we all could sing of this list and its members "You got me >through a hard time tonight, today, this week, ...." > > The Brian Collins's, Camilla Flinterman's, Charlie Meyer's, >Margaret Tuchman's, and the many helpful Barbara's, to name a few, but not >at the cost of slighting any not named, have found a new avocation in >helping all of us. > > The recent few complaints have concerned sleep or the lack thereof. >I personally wake up every two hours or less to take my personal sanitary >plumbing to the bathroom. If my bladder were better, however, my sleep >would be less restful than it is. I don't move or turn over in my sleep >and more than two hours in the same position (left side, right side, or >back) would cramp my muscles so that I might have difficulty getting my >plumbing to the bathroom in time. All things work together for good !?! > > As for the other uses of personal plumbing: when my neurologist asked >me if I had any problems with my genitals, I said "no," except that they >don't work anymore. He smiled at my answer. By the way to pursue this to >its bitter end; my prostate is very small for a man my age, so the cause of >my problem can be laid entirely at Dr. Parkinson's door. I guess its nice >to know. End of personal confession. > >My final words, for now, concern time. If there is any single symptom I >would call characteristic of my PD it is my altered perception of time. >Time just doesn't pass more slowly or more rapidly; it is just out of >control. "Hours creep. Days fly." My body is enslaved to a rigid pill >schedule which is not capable of comfortably regulating my symptoms. Does >anybody have any wisdom for me? > >George Andes 63/15 and counting > >------------------------------ > >Date: Thu, 24 Jul 1997 23:32:03 -0400 >From: Ken Becker <[log in to unmask]> >Subject: Re: Delete THIS!. > >Sue, I am glad you liked it too! ken B > >------------------------------ > >Date: Thu, 24 Jul 1997 23:46:03 -0400 >From: Henry Guttentag <[log in to unmask]> >Subject: Re: what to say for Don > >Dear Don: >Please hang in there, we need you. Continue to post we read you loud >and clear. > >Hope you will feel better soon. >Henry Guttentag CG for wife 63/9 > >___+++++++++____________+++++++++++++++++ > >[log in to unmask] wrote: >> >> i have been crying for last 2hrs i don't undarstand some of the problen >> some pmp are talking about. only got 2/1/2hr sleep last night. even i got >> bed i can change. i am gettin afraid to post any thing.as i might some one >> out there. not sure what i am talking about now. my legs hurt. falling down >> all moring . how can i help ypu when i can't help my self. i need the net >> now bad. i for got my grils name today. gusse i will close. sorry tobother >> any one. I.Y.Q. don [log in to unmask] com 72/25 > >------------------------------ > >Date: Thu, 24 Jul 1997 23:54:04 -0400 >From: cln <[log in to unmask]> >Subject: Don & Friends > >Don...Nothing wrong with a good cry. It relieves tension and lets our >emotions speak for themselves. It's a cleansing feature we humans use >to get rid of the blues. Try to relax and get yourself some rest. >After reading all the "well" wishes you are receiving from your friends on >this listserv, tomorrow is bound to look brighter. > >Best wishes from Eugene, OR. > >Clara Nistler >Gene Nistler 63/10 >[log in to unmask] >_____________________________________________________________________________ >It is not difference which immobilizes us most, but silence. > -Andre Lorda > >------------------------------ > >Date: Fri, 25 Jul 1997 11:54:38 -0400 >From: burnham <[log in to unmask]> >Subject: liver detox > >Catching up since we were in Spokane for five days. Had 21 digests waiting. >I get one or two read each day and receive two or three, not making much >progress!! > >I was interested in the subject of liver detox. Over a month ago, we had >some testing done by a person specializing in applied clinical nutrition and >contract reflex analysis. She told Don that his liver needed to be >detoxified. She sold him a product put out by the Standard Process Inc. >Hopefully he will be tested again this weekend. (if I can get him out of the >field long enough) Since the last 35 years have been spent farming and >ranching I feel quite sure that his PD could be caused by the many chemicals >that he has used over the years. Nancy B cg for Don 63/13. > >------------------------------ > >Date: Fri, 25 Jul 1997 00:54:41 -0400 >From: MR SEYMOUR GROSS <[log in to unmask]> >Subject: SEN. WILLIAM H. FRIST'S #s > >WALTER, PAT AND OTHERS, > > > >PHONE #: 202-224-3344 > >FAX #: 202-228-1264 > >E-MAIL: [log in to unmask] > >AT THIS POINT TIME IS OF THE ESSENCE IF A HEARING IS TO BE SCHEDULED >BEFORE ADJOURNMENT. > >REGARDS, >DOLORES > >------------------------------ > >End of PARKINSN Digest - 24 Jul 1997 >************************************ > >