 |
 |
Ref::On Behalf Of ERVIN_MCCARTHY Ervin, You wrote: >> After hearing >> negative remarks about ENDEPRYL I have elected not to take it. I'm not sure where you heard these negative remarks, but rest assured People With Parkinsons (PWPs) all react differently to the drug. If you stopped taking a medication every time you heard that someone had a reaction, you would be left with no meds. You need to follow the advice of your neuro and let him/her help you find the medications that work for you. Use this list to develop topics for discussion with your neuro. My neuro gives me some leeway in dosage, but stopping the medication isn't an option without consultation. Some studies have indicated that Eldeprly may slow the progression of the disease. In many newly diagnosed patients it may also relieve symptoms adequately to delay adding other medications. Other studies seem to indicate that it has no effect on the progression of the disease. So if you are not having severe side effects from the medication, I would think it wise to let some money ride on the Eldepryl horse just in case it comes in. I personally have had some side effects from Eldepryl, but I'm also taking it in combination with other medications. One side effect has been sensitivity to caffeine aggrevating the cramping in my right arm. I'm currently working with my neuro to rework my meds and dosages to come up with a better treatment of "my" symptoms. By the way, welcome to the club. I just passed my one year anniversary of diagnosis. I am afraid there are no absolute answers. It will take you some take to adjust to your new companion and to find a treatment that works for "your" symptoms. Keep your head up. I made it through my first year and I have to admit it wasn't as bad as I had anticipated. I'm still working, coaching two soccer teams, dropping dead trees on our nine acres and camping and hiking. Life goes on. It is only a minor setback. Things will get worse, but there are a lot of war horses on the list that have shown we can make it. They have broken the four minute mile and all we have to do is follow in their footsteps. Good running. Phil Gesotti 47/1+ [log in to unmask]