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George B....

I had the bovine collagen injections into my vocal cords at the UCLA Neck &
Throat Clinic, by Dr. Gerald Berke.  This procedure is covered by Medicare if
you have that, or will cost ya out-of-pocket $500 if ya don't have Medicare.

This is NOT a one-time treatment.  The initial injections last from 3 to 5
months and thereafter are repeated about every 10 months or so... depending
upon how fast your body absorbs the collagen.

I cannot begin to tell ya how much I value having this procedure available to
me.  It gave me my "normal' voice back!   It ALSO helped my breathing
considerably, which was an added, and unexpected bonus.

This is a 5 minute, painless procedure, which corrects vocal cord problems,
NOT muscular problems -- so it won't help ya if the muscles around mouth
and/or tongue aren't working properly.   It's your for the MD to tell if your
vocal cords aren't working at full capacity tho since they are video-taped as
you speak, thereby permitting the MD to SEE the problem if it is with the
vocal cords.

It is my understanding that UCLA also teaches the Lee Silverman method of
speech therapy, tho I don't have a phone number for you.  I CAN find it out if
you're interested.

Please feel free to contact me about the collagen injections if you have  any
questions or just wanna discuss it.

Barb Mallut
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From:   Parkinson's Information Exchange on behalf of George L. Bousliman
Sent:   Tuesday, August 05, 1997 6:22 PM
To:     Multiple recipients of list PARKINSN
Subject:        speech problems

Dear Barbara,

I'm primarily  an observer of the PD  list and have noted your frequent
messages on a wide variety of symptoms.

I've been diagnosed for 10 years, have had three thalamotomies (number 2
was botched and had to be redone), am currently on sinemet CR, regular
sinemet, amantadine, and zoloft.  I'm doing fairly well and still work
full-time (executive director of the state bar of Montana), but I'm
sounding more and more like Donald Duck.  My once rich baritone is now a
squaky imitation of the real thing.

You mentioned collengen (sp?) injections.  Was this a one-time treatment,
or does it have to be repeated?  Also, do you know anything about or can
you refer me to a source for information on the  Lee Silverman technique.

Thanks in advance for your help.

George L.Bousliman