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Sadly being a sensitive, informed carer, is not of itself, proof
against the feelings of rejection that many carers must feel.
The knowledge that a PWP has body language difficulties
does not make those difficulties either stop or easy to live
with.  It must be not unlike trying to hold a conversation
with someone with a bad stutter.  We all know that the
correct thing to do is to let the stutterer speak for themselves
but the temptation to 'finish' words is so strong that it
requires an act of will not to.  This can produce feelings
of frustration, especially if you have other things to do. The
range of responses open to the listener are limited. They can
remain calm and give the speaker time (a response available
only to those of a certain disposition or those who have taken
the trouble to learn how, also a response which uses a lot of
energy), they can ignore the feelings of the stutterer and finish
their words for them, or they can avoid the situation by avoiding
the stutterer unless communication is essential.

There is a direct analogy with the 'body language' stutter of PD.
As my PD has progressed I have watched as friends choose
between the calm and avoidance options. With friends the
'jumping in' option seems to be a transitional phase leading to
one or other of the others. Not so with the carers I have observed.
Many seem to choose the 'jumping in' option, which leads to
a constant flow of low level bickering.  Perhaps this is because for
carers the avoidance option is not simply a matter of lossing touch
with someone. Sadly some do choose avoidance.

Some of us are lucky enough to have carers who have opted
to remain calm and accepting. Those of us in that situation would
do well to remember that for many of them remaining calm is not
easy, and is in fact an act of will .  We PWP need to acknowledge
the frustations inherent in our loved one's situation and reciprocate
with acts of will of our own.  If our body language no longer auto-
maticaly transmits our feelings we need to replace the automatic
with the deliberate. Just as many of us find it easier to walk by 'marching'
ourselves with a silent left - right - left - right, we need to devolop
some means of reminding ourselves to let our carers know that we
care for them too.

For myself, I intend to start by printing this out and giving it to my wife.
I also resolve that if conversing during an 'off' period, I will conciously
turn my body towards her and make deliberate eye contact. I will find
ways to remind myself to initiate touching and hugging when 'off'   and,
most important of all,  I will put letting her know that I love her at the
top
of my List Of Things To Do When 'On'.

Dennis.

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Dennis Greene 47/10
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http://members.networx.net.au/~dennisg/
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