William Gregor wrote:
>
> Dear Kathy,
> We would be very interested in the results of the sinemet
> reduction. Recently, the neuro
> started my husband on the Mirapex with no reduction to Sinemet of which
> he is now taking
> 25/250 4x a day. The 3 weeks on the progressive Miralpex was an
> absolute nightmare so he is now off of it and all the neuro said was to
> see a movement disorder specialistt inb which we have to wait until Oct.
> to do that.
> His case was diagnosed 4 years ago and has no tremors however the
> other
> symptoms have put him in a wheelchair totally disabled. The progression
> has been terribly rapid and we were so hoping that the surgery
> performed in France with the double implants
> etc. was a glimmer of hope.
> After speaking with Medtronics we were informed that the FDA is at
> least 2 years away from approval. We were advised to call our
> Congressman. Is there anyone else on line who is in this predicament?
> Would love to hear.
> [log in to unmask]
I agree with the advice to see a movement disorder specialist. It may
even be inapropriate for him to be taking any sinemet at all! The first
question to be answered is, Does the sinemet do him any good? It sounds
to me like he is a possible candidate for a diagnosis of one of the
parkinson+ syndromes. There are three signs that a person has an
atypical parkinsonism.:
1. does not respond to sinemet
2. does not have a tremer
3. the most prominent symptom is a walking and balance
problem from the very first.
If this is the case one should suspect atyical parkinsonism. The bad
news
is that none knows the cause or anything to do for it. The good news is
that you won't be spending money on worthless medication and you won't
have any of the side effects.
I have looked into this case because I have been diagnosed as a case of
atypical parkinsonism. For the last 6 months have been unable to walk. I
am totally wheelchair bound.
---Milo 72/dxed 5 yrs/ about 9yrs
--
Milo V. Anderson, Ph.D. Knowledge is free at the library;
Box 417 bring your own contianer.
Angwin, CA
94508
voice 707 965 2508 ODE TO A METAPHOR
fax 707 965 3148 Ilustrations are useful,
e-mail [log in to unmask] Or what's a meta-FOR.
