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4.      Organize a tour of a local research facility.  The tangible promise of
a cure is an integral part of our message.  Giving a Member a first-hand
look at the research is a good way to gain their enthusiastic support.
Work with your neurologist, Parkinson's researchers and local or
national organizations.
5.      There's political strength in numbers.  One advocate  at one event
will not have the impact of 10 people with "Pass the Udall bill -- NOW!"
signs every time a Member appears in public.  Work with your support
group, local and national organizations and media to coordinate
advocates and events in your community and/or state.
6.      Be creative, direct and persistent.  If your Member has a weekly
call-in radio talk show, organize a group of advocates to place calls in
support of the Udall bill.  If the Member is not a cosponsor, call in
every week until they are.  Remind them that Parkinson's doesn't take a
recess!
7.      Thank Members who are already cosponsors.  With a little
encouragement, cosponsors will often become more aggressive champions.
A personal thank you (again, the more the better) or a complimentary
letter to the editor (please see the enclosed sample) serve to remind
Members of the urgency of our issue and also energize them to support
immediate action in September.
8.      Don't forget the importance of good media relations.  Send press
releases to your local papers announcing such happenings as support
group meetings and activities, meetings with Members (either at their
offices or your support group meetings), and visits to local research
centers and hospitals.  Offer story ideas, such as human interest
stories, ongoing progress in Parkinson's research, local grassroots
efforts in the national campaign to pass the Udall bill, or profiles of
a day-in-the-life of a Parkinson's researcher, patient or caregiver.  Be
prepared to recommend local scientists and researchers as resources for
interviews, and offer to make the necessary arrangements.
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Parkinson's Action Network
800-850-4726
Headquarters:
818 College Ave., Suite C
Santa Rosa, CA 95404
707-544-1994 phone
707-544-2363 fax

Washington, DC
202-628-2079

email:  [log in to unmask]
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