Print

Print


hi elizabeth

>Every night I sit at my PC and visit with my new found friends.

i know the feeling!
whaddya mean, every night?
how about morning, noon and night?
[just joking! - hah!]

my isle-olation makes all of you, new and not-so-new, important to me
and there's something about communicating with other via e-mail
that is unique:
there is nothing visual to confuse the message:
it is 'pure'

no 'looks' 'appearance' 'lifestyle' 'wealth' 'poverty' issues
no gender [if concealed, either deliberately or not]
no nationality
no race
no accent
no 'disabilities'

just the words that you are motivated to tap out on the keyboard;
which brings me to your message;
these words of yours jumped out at me

first:

>...more and more I am beginning to feel that I have no business
>even telling my friends that I have PD ...I have very little tremmor
>which is my only symptom that anyone else could see

second:

>The only real problem is my great difficulty in sleeping.

third:

>I am affraid I am giving  the wrong impression of what PD really is.
>Here again I am affraid I am not relating how I feel about this.

one of the reasons i keep referring to grace
in my various posts
is due to a lot of reading i have done over the past several years
[to name some names - peck, jung, zukav, mitchell, faludi, burns, steinem]

the concept of 'coincidence' or 'moments of grace'
drew me quite strongly because i could relate to it so clearly

in scott peck's description of these moments,
he described them as all around us all the time;
it just takes a little shift in awareness to see them.

his analogy was:
[ono, another automobile analogy!]
"you know when you buy a volkswagen
and suddenly every second car on the road
seems to be a volkswagen?"
is fairly close to the way he describes it.
as the former owner of a white vw van
i instantly knew what he meant.

we all experience coincidence
and most of us probably shrug it off as 'pure chance'
i cannot do that any longer

where am i going with this?
just replace 'volkswagen' with 'clinical depression'
in the above analogy

i am very conscious of the possiblity of over-kill here
'there's no patriot like a converted patriot'
[or something like that]

and i am still in the process of shedding a 'ms-fix-it' role
which i loved to cling to:
"hey, i see this problem - here, let me help you with that!"
no-one can 'fix' me but me
no-one can 'fix' you but you

but

[you knew this was coming, didn't you?]

in the same way that
i can listen to someone's description of medications
and then, in response to a plea for help,
i can toss in my opinion for whatever it may be worth

i can interpret your words as a description of symptoms
and the fact of your message as a request for input

so

for what it's worth

from a 'layparkie' viewpoint
coloured by my personal experiences, of course

the 'first', 'second', and 'third' excerpts from your message
all appear to my eyes
to be negative distorted thinking
[those 'automatic thought' monkeys]
and therefore, probably, symptoms of cd

it is extremely common  [especially in parkies]
and is extremely commonly under-treated [especially in parkies]

i feel like i am living proof

i've been 'communicating' like a mad fool recently
because that's the way 'i' am 'normally'

i have always valued solitude
but the non-communicating 'hermit' created by cd in me is a fraud
a house of cards structure built on distortion and false perceptions

and, like the volkswagens,
the more i learn about it
the more i see it

for whatever it's worth


with love from your syber-sis

janet


[log in to unmask]