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>From: "Automatic digest processor" <[log in to unmask]> >Date: 8/13/97 4:50:50PM >To: "Recipients of PARKINSN digests" <[log in to unmask]> >Subject: PARKINSN Digest - 13 Aug 1997 - Special issue > >------------------------------ > >Date: Wed, 13 Aug 1997 16:56:35 -0400 >From: Leslie Van Dover <[log in to unmask]> >Subject: ++Parkinsn List Study Group++ > >From: Parkinsn List Study Group; McMaster University School of >Nursing,Hamilton, Ontario, Canada; Sheryl Boblin-Cummings Ph.D., RN, >Dauna Crooks D.N.S., RN, Barbara Patterson, Leslie Van Dover Ph.D., >RN.; >Mary Fawcett, MHSc, RN. > > >We have been looking at messages from the Parkinsn List archives to >develop an understanding of how people use the list and its value to >them. From this, we have some ideas about "what is going on on the >List?". We would now like to hear directly from list members about >your >experience with the Parkinsn list. > >Your answers to the questions below will help us to better >understand >your experience and to interpret it to others. You can choose to >respond >to these questions or not. If you share your expertise and >experience >with us, we will be grateful. It's important for us to hear from >you IN >YOUR OWN WORDS. If you find it too difficult to respond or are not >interested, that's OK. > >You can respond to some questions and not others, as you wish. You >can >respond "on list" or privately to: Leslie Van Dover at: >[log in to unmask] > >People join Lists for various reasons > >1.How did you first learn about the Parkinsn List? >From someone already on the list to whom I was introduced by a mutual friend. >2.When did you first join the Parkinsn List? June 1995 >3.What reason(s) did you have for joining the Parkinsn List? Support and information >People stay on lists for different reasons. > >4.Why do you stay on the Parkinsn List? Same resons I joined >5.What are the three most important things you get from the >Parkinsn List? 1. Emotional suppot. 2. Knowledge 3. Inspiration >6.What else are you getting out of belonging to the Parkinsn List? Good friends >From reading the archives, we think that one ofthe main things >that goes >on in the Parkinsn List is something we call "connecting". By >connecting, >we mean sharing a part of our lives with each other, creating a >sense of >togetherness. > >For example, people can "connect" with: other people who are having >similar experiences; ways of dealing with PD in everyday life; >information about PD and its symptoms and treatment; and ways of >taking >action to improve the situation for themselves and others. > >7. Do you think "connecting" is one of the mainthings that is >happening >on the Parkinsn List? Definitely >8.Is connecting happening for you on the Parkinsn List? Yes >If it's not "connecting", how would you describe what is happening >for you? N/A >9.If something is going on on the Parkinsn List thatis MORE >IMPORTANT to >you, what is it? Nothing >Leslie Van Dover >McMaster University School of Nursing >[log in to unmask] Bruce G. Warr, PhD (Cand) Healthcare Informatics Lab Univ of Maryland Baltimore County