Print

Print


    CHARLIE WROTE:


>JAY,
>
>I have swallowed the can worms hook line and can.
>
>What did you claim was disabling you?  Did you have a diagnosis when you
>went into the exam or just symptoms?  You reported that they sent you to
>a psychologist.  Was there any claim of any other disorder in addition
>to or instead of PD?
>
>It sounds like there is some important information missing. Were you
>previously diagnosed with a disabling condition of any kind? You baited
>the hook with the issue of why you had not sought help-  now reel me in.
>Can you fill us in??
>
>Charlie
>
>CHARLES T. MEYER, M.D.
>Middleton, WI
>[log in to unmask]


Charlie,

Short of composing my autobiography, I will attempt to illuminate the facts
as to what transpired.  To impart a convincing rationale for same is where
the challange lies.

First, a little history is in order.  My first symptom appeared in the
Fall of 1980.  I remember this date because I had just opened a consulting
business in Honolulu.  Because I was a faster typist than my secretary, I
would often just "bang" things out instead of trying to explain what I
needed.  Ever so slightly, I noticed a loss of dexterity in my right hand
when typing.  I would assume, at least for the majority of souls,  a
gradual loss of dexterity would be perplexing at minimum.
However, not so for me.  Why?  Well, it's quite simple to explain.  Also
that same Fall of 1980, I was "introduced" to a lady friends Maytag clothes
dryer rather abruptly!  (you know, the dependability people)
As I was reaching over the dryer in an attempt to recover an article of
clothing that had fallen behind it,  I became "one" with this machine as
220 volts entered via my left arm and exited out the top of my right foot.
Many people claim to experience the "tunnel" with white lights etc. as part
of their near-death experience.  Not me, however, I had July 4th in
September.  A personal "light show" with compliments from Maytag!
I was "stuck" to the dryer for approximately 10 to 15 seconds while my
brain produced this light show in protest.  I was finally thrown off to
join the living once again.  The only tunnel that I ever experienced as a
result of that happening was the inside of a CT Scan.  Coincidence or
cause?  Is there life on other planets?

As years progressed, so did my symptoms.  It never occured to me that my
symptoms may be the manifestation of a diseased brain.  Up until 1993, my
symptoms were confined to my right side/upper torso.  The progrssion was so
slow that I just learned to compensate with my left side.  But now the
symptoms were resembling a palsy.  If this wasn't caused by the Maytag Man,
maybe when I flipped my 280Z in 1977 or when I fell 100+ ft. on the Oregon
coast back in 1978.  Chiropractic?  Acute stress?  Because I never
considered the possibility of disease verses injury, drug therapy was never
a conscious option.

Early in 1995, almost overnight, I began to drag my right leg, gait
problems, equilibrium, slower than slow, drooling, more depression,
fatigue, etc., etc.  All these additional symptoms became part of my life
within a six month period.

By this time I had sufficient debilitating  manifestations of Mr. PD that I
no longer could function adequately in making money so I stopped!
Because of the very limited knowledge I had of Parkinsons, it became
suspect but not yet obvious to me.  At that time, I still had not seen a
physician partly because I no longer had insurance as well as being
apprehensive and choosing denial/avoidance over a formal diagnosis.  During
the next couple of months and 100+ hours of learning nearly everything I
could about Parkinsons, I SELF-DIAGNOSED being totally confident of having
the disease or some atypical symptomatic variation of same.

Also early in 1995, I applied to SS for disability.  After having gone
through 80% of the application process, my moderate depression went to the
severe mode.  I just dropped the ball and SS rejected me on that basis.

During the Spring of 1996, I re-applied to SS going through exactly the
same process as in 1995.  At this point, I still had not seen any
physician.

In October of 1996, my SSDI was approved immediately upon their receipt of
my examination results.

On my SSDI application, I stated that I was disabled from symptoms of
Parkinsons Disease.

At the time that I went in for my medical examination for SS, I had not
been previously diagnosed.

I reason that I was sent to a psychologist was because I listed depression
which SS differentiates from other physiological manifestations.

Other than being diagnosed as having moderate depression by a psychiatrist
in 1992, I have never had any disabling conditions.
FYI-Desipramine & Klonopin (take me up then bring me down)

I don't know Charlie, you tell me!

Jay

Pray for a cure & each other!