Print

---

Bruce G. Warr wrote:
>
> >From: "Automatic digest processor" <[log in to unmask]>
> >Date: 8/13/97  4:50:50PM
> >To: "Recipients of PARKINSN digests" <[log in to unmask]>
> >Subject: PARKINSN Digest - 13 Aug 1997 - Special issue
> >
> >------------------------------
> >
> >Date:    Wed, 13 Aug 1997 16:56:35 -0400
> >From:    Leslie Van Dover <[log in to unmask]>
> >Subject: ++Parkinsn List Study Group++
> >
> >From:   Parkinsn List Study Group; McMaster University School of
> >Nursing,Hamilton, Ontario, Canada; Sheryl Boblin-Cummings Ph.D., RN,
> >Dauna Crooks D.N.S., RN, Barbara Patterson, Leslie Van Dover Ph.D.,
> >RN.;
> >Mary Fawcett, MHSc, RN.
> >
> >
> >We have been looking at messages from the Parkinsn List archives to
> >develop an understanding of how people use the list and its value to
> >them. From this, we have some ideas about "what is going on on the
> >List?".  We would now like to hear directly from list members about
> >your
> >experience with the Parkinsn list.
> >
> >Your answers to the questions below will help us to better
> >understand
> >your experience and to interpret it to others.  You can choose to
> >respond
> >to these questions or not.  If you share your expertise and
> >experience
> >with us, we will be grateful.  It's important for us to hear from
> >you IN
> >YOUR OWN WORDS.  If you find it too difficult to respond or are not
> >interested, that's OK.
> >
> >You can respond to some questions and not others, as you wish.  You
> >can
> >respond "on list" or privately to: Leslie Van Dover at:
> >[log in to unmask]
> >
> >People join Lists for various reasons
> >
> >1.How did you first learn about the Parkinsn List?
> From other pwp's.
> >From someone already on the list to whom I was introduced by a
> mutual friend.
>
> >2.When did you first join the Parkinsn List?
> June, 1996
> June 1995
>
> >3.What reason(s) did you have for joining the Parkinsn List?
>
> Support and information
> Information and feedback from other pwp's.
> >People stay on lists for different reasons.
> >
> >4.Why do you stay on the Parkinsn List?
>
> Same resons I joined
> Same reasons I joined
> >5.What are the three most important things you get from the
> >Parkinsn List?
>
> 1. Emotional suppot.
> 2. Knowledge
> 3. Inspiration
> Same
> >6.What else are you getting out of belonging to the Parkinsn List?
> knoowledge from the ""experts"
> Good friends
>
> >From reading the archives, we think that one ofthe main things
> >that goes
> >on in the Parkinsn List is something we call "connecting". By
> >connecting,
> >we mean sharing a part of our lives with each other, creating a
> >sense of
> >togetherness.
> >
> >For example, people can "connect" with: other people who are having
> >similar experiences; ways of dealing with PD in everyday life;
> >information about PD and its symptoms and treatment; and ways of
> >taking
> >action to improve the situation for themselves and others.
> >
> >7. Do you think "connecting" is one of the mainthings that is
> >happening
> >on the Parkinsn List?
>
> Definitely
>
> >8.Is connecting happening for you on the Parkinsn List?
>
> Yes
>
> >If it's not "connecting", how would you describe what is happening
> >for you?
>
> N/A
>
> >9.If something is going on on the Parkinsn List thatis MORE
> >IMPORTANT to
> >you, what is it?
>
> Nothing
> nothing
> >Leslie Van Dover
> >McMaster University School of Nursing
> >[log in to unmask]
>
> Bruce G. Warr, PhD (Cand)
> Healthcare Informatics Lab
> Univ of Maryland Baltimore County