http://www.tulane.edu/~aau/CFR7.28-8.1.97.html#SNIHReauth7.24.97 AAU CFR Reports on Hearings & Markups Association of American Universities For the Week of July 28 - August 1, 1997 July 24, 1997 Senate Labor and Human Resources Committee, Public Health and Safety Subcommittee Hearing: National Institutes of Health Reauthorization Members Present: Subcommittee Chairman Bill Frist (R-TN), Dan Coats (R-IN), Jim Jeffords (R-VT), Christopher J. Dodd (D-CT), Harry Reid (D-NV), Mike DeWine (R-OH), Michael B. Enzi (R-WY). Opening Statement: Chairman Frist introduced the hearing as one in a series of hearings to determine Biomedical research priorities and the role that Congress should play in NIH. This hearing was specifically aimed at studying the potential benefits and harms that can occur when similar research is done at more than one NIH institution. Panel 2-- Parkinson's Disease Witnesses: Senator Paul Wellstone (D-MN), Senator John McCain (R-AZ). Testimony: Senators McCain and Wellstone championed the need for more funding for Parkinson's disease. Senator Wellstone said victims of Parkinson's disease receive lower levels of funding because they are embarrassed about the disease and in turn do not fight for it politically. Senator Coats added that the amount of funding a disease receives depends on the political clout of its advocates. Perhaps, he suggested, the best way to determine funding levels is to have an outside opinion on how to allocate these funds most effectively. Panel 3-- Parkinson's Disease Witnesses: Zack Hall, director, National Institute of Neurological Disorders and Stroke, NIH; C. Warren Olanow, chairman, department of neurology, Mount Sinai School of Medicine, New York, NY. Testimony: Mr. Hall testified on the recent funding increases for Parkinson's Disease over the past five years. Mr. Olanow testified that Parkinson's Disease is a relatively common disease, with each American having a 2% chance of being afflicted. He said the societal cost for Parkinson's Disease is $25 billion per year, and will increase with the aging of the baby boomer generation. Questions and Answers: Senator Frist asked if funding had not been significantly increased, would the Parkinson's Disease gene have been found? Mr. Hall replied that the funding had been critical to the finding of the gene. He added, however, that it was the preliminary stages of basic research that went into the discovery that required substantive amounts of funding. Margaret Tuchman (55yrs, Dx 1980)- NJ-08540 [log in to unmask]