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I would echo everybody's concern re: Eldepryl.  When Ed (50/4) tried to go
off of it a couple of years ago, the resulting pain (yes, PAIN) was too
much, and he went back on it.  Our neuro is lukewarm about its possible
long-term beneficial effects as far as halting progress of PD.

I'm not sure if Ed really feels better by taking it because it helps his
pain OR if it in some way (are we talking amphetamine breakdown here?)
helps his mood?  The last thing he would do is habitually take a
mood-altering drug *intentionally* but that could be exactly what's
happening here.  He doesn't know which of the drugs (Sinimet, Permax or
Eldepryl) contributes to the hallucinogenic nightmares he has about 30
minutes after falling asleep many nights.  Who knows??

Regards to all,
Linda B. (husband Ed, 50/4)
Columbia, MO
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On Thu, 21 Aug 1997, Margie Swindler wrote:

> Brian - You wrote,
>
> >Now here's the stinger: IF this case is correct, we ought to be saying to
> >the REST OF THE WORLD: Why are you not taking Eldepryl? because they are
> >the ones at risk, not us.!!!
>
> Interesting point.  I remember a "Sixty Minutes" or "20/20" report several
> years ago about the development of Eldepryl  The report said that the
> researchers were so convinced that it would protect cells from damage that
> they were all taking Eldepryl themselves, even though not one had
> Parkinson's.  I wonder if they experienced sleeplessness from it, and how
> many, if any, are still taking it.
>
> Margie Swindler       [log in to unmask]
>