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Dear Listmembers, The decision is taken. I'll have a pallidotomy at 23 september. Although my symptoms have diminished to a point that allows me to live again, I decided to have a pallidotomy. I had taken the decision after my first visit to the hospital, but had doubts after I had my symptoms more under control. The dyskinesia that was such a torture for a long time, has not completely disapeared, except for a bout late at night. I can't diminish the one period in the evening. Besides, to prevent it during the day, I have to be undermedicated much of my waking hours. The medical staff had seen my dyskinesia on my first visit in March. So they now saw the difference and found it impressive. But nevertheless the neuro-surgeon was very positive about my chances to ameliorate the dyskinesia yet more by pallidotomy. He is not of the kind that always sees only positive outcomes. I am aware that I take a risk, but not doing it is a risk too; the risk of letting time pass which never comes back and be during this time more disabled than I have to be. I learned that a dyskinesia like mine is yet more exceptional than I had realized. Some months ago, when I still did live with the many-hours-a- day-dyskinesia, a problem arised: getting an MRI-scan. Afer some failures I was hospitalised and with a sleeping med, which was only allowed with constant supervision during the scan, because I am using El-depryl, the job was done. The nurses, who were on the neuro ward already for two years, were frightened seeing my dyskinesia and said they had never seen something like that before. The same reaction came from the nures in the hospital in Amsterdam. I was recently hospitalised there for some days to have pre-surgery testing and checking up. Ida Kamphuis, 53/13 [log in to unmask]