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janet paterson wrote: > > hi faye > > you wrote: > >I pray for continuation of our list discussions > >with the love and friendship of a family atmostphere > >(thanks, Janet .. what a great idea!) > > you are most welcome! > > i guess the significance of the sharing that goes on here > is much more important to me > on this beautiful but limited island > because of what is not here: > no neurosurgeons > no neuros of any kind > no 'movement disorder clinics' > no support groups > > i have YET to meet a parkie in person > [after nine years!] > > i have admitted to being spoiled by living on my own > enjoying the luxury of solitary mulling time > > but the only reason that luxury doesn't become a prison > is that i have > 'you lot' > through the miracle that is the internet > > we each one of us are individuals > with our own chemical 'stew', granted, > but also with our own unique talents or strengths > > i think the dynamic of this medium > plus all of our strengths pooled together > is the miracle of our time > > if i had pd > and still lived here > but with no internet in existence > ... i can hardly bear to think about it > > i think i can declare without hesitation > the only reason i feel so comfortable with having pd > and so optimistic about the future > is due to this miracle > > >If that is not possible for all, > >then perhaps we can maintain at least > >the polite and collegial atmosphere > >of people working together toward a common goal > >of surviving, fighting and learning as much as possible about PD.. :) > > i'm glad that ron felt 'safe' enough with us to express his frustration > this isn't a 'public forum' > it's a group of people brought together > by an uncommon condition > which is progressive, incurable, and degenerative > > we are not the average joe or jane on the street > we and the people we care about > have been through and are still going through > a test by fire > > at times we need to share what we are really feeling > because this may be our only outlet > this may be the only group we have access to > who might understand > > being a family doesn't mean 'happy days' > being a family doesn't necessarily mean being 'polite' > being a family doesn't mean we're 'on the prowl' or 'lookin fer luv' > it means facing ups and downs together for the long haul > knowing that we can just be us no act no pretense > knowing we're not alone > > and if that's not a miracle > i'll eat my hat > > your syber-sis > > janet > [log in to unmask] Hi Janet! Until now, I have chosen not to post my opinion in regard to "splitting" this list subscription. However, upon reading your post, I feel compelled to offer this brief response. In regard to all those who prefer to "split", I respect your opinions and even empathize with some of your reasoning. However, I believe that within the contents of Janet's writing, one will see a finely articulated rationale for closing this issue. Because this list was created for the purpose of offering a forum for issues relating to Parkinson's, we must remember that there are faces behind those issues, all with varying needs and abilities. I believe that the humanistic side is definately worthwhile therapeutically for the vast majority of list members. Janet, thanks for your perspective! Jay Henkelman 47/7 [log in to unmask]