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^^^^^^GREETINGS FROM^^^^^^^^^^ Ivan Suzman 47/10 [log in to unmask] Portland, Maine land of lighthouses 65 deg. F mild but overcast *********************************************************** Dear listmembers, I am re- posting Donna's suggestions, because a decision needs to be made. Unless the National Parkinson's Foundation responds REAL SOON, it seems to me that PUBLICITY and/or a PUBLIC OUTCRY might be needed to end my being ignored and abused by the NPF. I have tried to avoid this route. But my Miami disaster still goes on. It makes me feel VERY reassured to have Donna's support. CanSOMEONE (Kim Seidman in California?) get the NPF to stop hiding from me and from the Listmembers, and refund my money?? IVAN SUZMAN On Fri, 12 Sep 1997 09:57:21 -0400 "Donna A. Bassolino" <[log in to unmask]> writes: >I hd some suggestions on this .. > >1- can you get a local TV station interested ? Here in the nY area >they > have things like "7 on your side" = where channer 7 raises enough > publicity over stuff that sometimes issues get resolved. > >2. we have to be our own advocates - but there ARE lots of us - > why don't you draft a short letter of protest of some sort - not >nasty > but explaining your situation and asking for help. > Direct it to the HEAD of the medical dept there in Miami and > also e-mail it to US - we can then all print it and send it out. > Maybe a flood of mail will intimidate them a bit. > >3. Combination of the two would be to send the mail to local papers/. > news stations in Miami ! > > It could look like the BIG?BAD $$-making Dr.s won't help a poor > guy with Parkinson - here they are committed to medicine and lives > turning someone away without helping - after he was desparate >enough to > come all the way to Miami for help ? > > Hey people come here from other countries - ddesparate for help - > w/o medical coverage - and sometimes get it FREE ! The least > we could do is help out own people. > > Just my 2cents > >Have a good day > >donna > > > >------------------------------------------------------------------------------ >- Donna Bassolino-Klimas, Ph.D. > Bristol Myers Squibb Pharma. Res. Inst. > Department of Macromolecular Structure > P.O. Box 4000 Room H3812 > Princeton, N.J. 08543 4000 > > (609) 252 4413 > INTERNET: [log in to unmask] > >------------------------------------------------------------------------------ >