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Barb, Good observation, and I agree - Ed has NO tremor but does have the phenomenon you all are describing, I think; in fact, sometimes his arm will feel like there is a electrical buzzing going on that I can feel when I put my hand on it. Interesting... Linda B.(Ed, 50/4) Columbia, MO ****************************** On Sun, 14 Sep 1997, Barbara Mallut wrote: > Larry and "All" > > I find it interesting that those of us who have "internal shakiness" don't > seem to have a VISABLE tremor. Periodically I've used that term in describing > how I feel to various MDI and the ONLY ones who indicated they knew at ALL > what I referred to was Dr. Robert Iacono (movement disorder specialist at Loma > Linda University Hospital and the neurosurgeon who did my pallidotomy) and the > new neuro (NOT a movement disorder specialist) I saw recently at Kaiser. > > Every other MD I've seen over the years has hotly denied that there even IS > such a thing as "internal shakiness" or "internal tremors," and IF there is > such a thing (which they insist there isn't!) it's not related to Parkinson's! > And reading your messages here has merely confirmed to me this IS a > PD-related symptom. > > That said - WE know there's such a critter as "internal tremors," 'cause we > HAVE 'em, and we have 'em in correlation to having Parkinson's! SO THERE, > ALL YOU MDs! <rueful grin> > > Barb Mallut > [log in to unmask] > > ---------- > From: Parkinson's Information Exchange on behalf of Lawrence Fleming > Sent: Sunday, September 14, 1997 7:01 AM > To: Multiple recipients of list PARKINSN > Subject: Internal Shakiness > > Mary, > > Before I was diagnosed I also experienced an internal shakiness. I attributed > it to anxiety and my GP prescribed a beta-blocker (the kind that entertainers > take to ease their stage fright). It worked great and relieved my tremor. It > also lowered by BP. Unfortunately it did nothing for the rigidity and > soreness in my arm that soon appeared. Now I take selegiline and atenolol > (beta-blocker). It's an interesting combination and I don't think I've heard > of any others on the List taking it. > It does work and on a regular basis I take 25mg/day. My GP told me to step it > up as high as 100mg if I'm anticipating a stressful day. It even slows my > tremor after exercising for long periods. Are any others taking a > beta-blocker? > Larry Fleming > [log in to unmask] > > > > > -----Original Message----- > From: Parkinson's Information Exchange On Behalf Of Mary Legan > Sent: Friday, September 12, 1997 8:46 PM > To: Multiple recipients of list PARKINSN > Subject: Internal shakiness > > I'm glad this topic has been brought up, as I too have very much wanted an > explanation of this phenomenon. I experienced this before my PD diagnosis, > when I described it to my neuro (who was treating me for migraines & insomnia) > as an "internal revving motor..........at that time I was taking a low dose of > Sinequon with Xanax......then the Xanax was replaced with Buspar (needless to > say, my "anxiety" didn't improve). At that same time, I was experiencing hot > flashes, etc. because of menopausal hormonal fluctuations, which may or may > not be relevant. When I then received the pd dx, I was started on Sinemet, > Paxil, & Trazadone (for sleep). No further problems with internal shakiness > until several months ago. At the time I was taking estrogen & progesterone, & > having severe daily migraines. Also, the internal revving was happening again, > & a difficulty which I don't remember having before - the need to breathe > deliberately & deeply. After some ado, I discontinued the hormones ~6 wks > ago. The migraines have shown moderate improvement, but the other symptoms > remain. I'm hoping that soon whatever confounding effects the hormones have > contributed will be out of the picture. It will make things much easier if > whatever symptoms remain can clearly be tied to the pd. Perhaps one or more > of our list members can at least explain the internal shakiness, for my > benefit & for the others who experience this. > Explanations of the other issues I mentioned are also most welcome! Mary > Legan 55/5+ > <My mother Joyce (68/6 months) changed doctors recently. She was taking > 25/100 Sinemet 4.5x/day, .25 Permax 5x/day, 10 mg. Paxil 1x/day. Her new > doctor wanted to reduce the Sinemet a bit and start her on Eldepryl. This > required her getting off the Paxil. About 4 days ago, she stopped the Paxil > and started feeling shaky inside-a nervousness that wouldn't quit. She decided > today to continue the Paxil again (she hadn't started the Eldepryl) and felt > better. She suspects this internal shakiness/nervousness is a side effect of > the Permax. Any thoughts on this? Has anyone had a similar sensation? Was it > related to a particular drug. Thanks. > > Debbie White > [log in to unmask] > > > --UPIMSRGSMTP01)_rDjmkpelJu)R)?xeNmTftYan- >