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I am 45 years old and was diagnosed as having Parkinsons in 1989 .
At the time I was living in Switzerland and went to see my local doctor
after my family had brought to my attention that I was holding my right a=
rm
in an unusual fashion . My doctor sent me to a neurologist for tests and =
a
scan and the specialist thought that it might be a very early stage of
Parkinsons . As I was just in the process of moving with my family back t=
o
Edinburgh, Scotland , he suggested that I wait 6 months and then go to a
specialist in Edinburgh to see what he thinks - this I did and the
diagnosis was confirmed .

Since then there have been various stages on the path of a steady but
fortunately slow deterioration - the ability to write slowly drying up
which led to the question of medication which I resisted as long as
possible but then began with a small dose of Sinemet , - the symptoms
gradually becoming more and more noticeable to others and the realisation
that this was not something that could be kept hidden, - the coming to
terms with the fact that there were things I could not do anymore ( drivi=
ng
a car !) .
I worked full time as an administrator at a school up until October 1996
when I gave up my job as it was agreed that my family and I would move ba=
ck
to Switzerland . I was however greatly relieved not to be working full ti=
me
anymore as towards the end I was only just managing the load . Now I woul=
d
like to work part time but regretably I have not been able to find suitab=
le
employment since we moved back to Switzerland.

My medication has meanwhile increased to 5x Sinemet 25=A6100 and 2x Artan=
e 2
mg .
For a while I took Selegeline as well but have now stopped that . My
specialist here would also like me to stop the Artane as he does not see
what benefit they can give me but I think that they give me a considerabl=
e
boost in my freedom of movement .
The "on" "off" effect is becoming more of a problem for me and we are
looking to the soon to be released dopamine agonists as being a possible
help ?

I have also - and still do - made use of various "alternative" therapies
from curative eurythmy, Alexander technique , Colour therapy ,
Anthroposophic medicine, and anything else that sounds interesting .

I have recently joined a local self-help group of "young" Parkinsons
patients and would also like to hear from the younger members of this
Parkinsn list - especialy people with young families and how they deal wi=
th
that situation.

I would of course be happy to hear from anyone else who has something to
share and I hope that I too can pass something on that may be useful to
someone else .

I look forward to hearing from you .

Mike Lumsden([log in to unmask])