Hello, I'm Romona...Wife to Tony (my hero) and mom of 3 kids, 2 of which have been dx'd with Dystonia (plus other things) ... both of my boys are using Parkinson's drugs to help manage the Dystonia(s)\Parkinsonism symptoms... Zach (my 7 year old) is currently on Sinemet and Lodosyn. Cory (my 5 year old) is taking Amantadine and Gabapectin (neurontin). I often lurk in the Parkinson's message board on AOL and happened to see Larry's post about this "group". I look forward to getting to learn more about the different treatments, therapies and people here. Since the boys aren't dx'd with a definative disease/syndrome they have several "labels" ... Have a great day... Elf in TN... Romona