 |
 |
<< Speaking of information, can anyone enlighten me on these wheelchair transfers? Is some kind of bed/toilet rail necessary to hold onto/pull with? I don't know about her upper body strength, she's losing so much weight. Thanks. emily (cg/Mom, 76, 2 months) [log in to unmask] >> Hi Emily (et all:), There are several catalogs that you can "order" to look thru in regards to this type of infomation .... a couple of the ones that I've got here are : Abilitations - which is where I first saw the J-board which would assit on transfering in and out of the wheelchair without having to lift them... the few times that I've "seen" one in action was inregards to a 9 year old girl with spastic dyplegia... she did it all on her own and my Grandfather in Law (stroke victim). The only thing is the max weight is 200lbs I don't know if that would be a problem for your mom. The price listed in the Winter catalog is 54.95 ..... I'm sure that you could order a catalog to "look" thru..the number listed here for Customer Service 1-800-850-8602 I haven't ordered anything from them other than "kid" things... since the boys are 7&5 ..but I do have a wish list that I'm forever adding too ..the columns are "need now", May need later and "Cool this would work great" I also have Rifton equipment catalog.... most of the "photos" are of children but there is a Professional Lift Walker that doesn't appear to be too "bulky" but it does look to be a very supportive device... battery operated in using the lift walker to give support also in sitting and tolieting. it's pricey though (at least for us)and maxes out at 225lbs I hope sharing catalog information is ok??? Just tell me if it's not <G> I do have a question about communication... since the boys are probably not going to miraculously get better due to the Generalized Dystonia/Parkinsonism ... chances are that things will get progressive ... my youngest son Cory is 5 and did learn some sign language... before finally starting on the Sinemet and regaining his "voice"... I'm wondering if any one has a preferance on different techniques.. I'm concerned that his arms/hands won't always be able to make clear sign... I've been looking into Eye-gaze comms, word boards and electronic speech tools. I'd love to hear your opinions on the one that you use.. the good points, pitfalls, and where more information can be found. thanks for education an Elf in TN... Romona Elf wife to Tony (my hero), and mom to Tori (age 9, nda), Zach (age 9, multichallenged), Cory (age5, multichallenged). The boys have no definative Dx but several labels... nystagmus, strubismus, Dystonia, Parkinsonism, Asthma, Execma, Hypotonia, Spaticity....ect Collectively the Dystonia/Parkinsonism effects the boys from eyes to toes. Currently Zach's taking Sinemet, Lodosyn and Cory is taking Amantadine and Gabapectin. He's also had 3 rounds of Botox, uses a walker or WC for mobility. ([log in to unmask]) http://members.aol.com/Elf808/index.html Also