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Elf in TN... Romona, I'm one of the youngest members on the list, onset-wise, having my first symptoms in my late teens, definite dystonia and stiffness when I was 22, diagnosed at 30 and I'll be 40 shortly. Yet, it floored me when I read about your boys. It seems from the various messages you've sent that you should consider seeing someone who specializes in Mitochordrial diseases. There is an exellent article in the August issue of Scientific American, written by a scientist/doctor who treats and studies these diseases. I just checked their web site and unfortunately that particular article is not included in their electronic version of the August issue. I wish you and your boys well and will pray for all of you. Terry Brennan [log in to unmask]