George L...
First of all, George... it's sure nice "seeing" ya back on the List again.
Been a while and I missed ya (as did others!).
I believe you'll find that each individual PD support group is as unique as
each individual WTH Parkinson's. And I believe you'll find that each
individual having PD and/or their caregivers get a different experience in
attending a PD support group.
After all....initially, when we come together as people having Parkinson's
Disease, usually THAT'S the only thing we have in common. Some folks show up
religiously at every meeting, and others have spotty attendance. Some
actively participate and others are "just there." (which doesn't mean they get
nothing form the meeting or the group.... They just get their input in their
own manner). Some treat a support group meeting as a social function and
others take it as deadly serious (much as we do here on the List, huh?)
In other words, George, it's a personal experience, within a group experience.
IF you're looking to create a video involving a PWP, why not do a "Year in the
Life of a Person With Parkinson's Disease?" This could even be a composite of
several Parkies lives as we DO share some common experiences, tho not all.
For instance... there's the search for a diagnosis when we've known for some
time that SOMETHING has gone askew in our body. So far, the internist,
rheumy, orthopedist, chiropractor, and aroma therapist (OK.. ok... we had our
doubts going in, but it was painless, and we were getting kinda desperate for
SOMEONE to do SOMETHING to help us) we've gone to has said they couldn't find
anything wrong with us other than that stiff arm and nearly immobile
fingers... and while it COULD be Parkinson's Disease, we're much too young to
have THAT... And it's back to square one.
There's as many stories and experiences as there are people with Parkinson's
and I think a video of a "Year In the Day of...." would be interesting.
Food for thought, m'friend...
Barb Mallut
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From: Parkinson's Information Exchange on behalf of George Lussier
Sent: Tuesday, September 30, 1997 4:27 AM
To: Multiple recipients of list PARKINSN
Subject: SUPPORT GROUP VIDEO
Dear colleagues,
Is anyone aware of a video that depicts what PD support groups are
all about?. One that not only talks to group functions, such as lending
support,providing information etc but will follow a member or two through
the year. Actually it would prove usefull for me to be aware of ANY video
that shows life in the PD support groups
A second and related question is whether there is a need for such a
video OR several videos given that different groups may reflect different
approaches depending on location, transportation etc
I've seen the listing Of support groups put out by one of the national
groups but that struck me as mainly boilerplate stuff. Any info would be
helpful.
Thank you
GEORGE
what a beautiful Morning
from Oklahoma
There's a bright golden haze on the meadow
There's a bright golden haze on the meadow
The corn is as high as an elephant's eye
And it looks like it's climbing right up to the sky
O what a beautiful morning, O what a beautiful day
I've got a beautiful feeling, everything's going my way
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