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To: Loretta CG for John 65/6
From: Will Kuipers

Subj.:  Physical Therapy exercises

Hi Loretta,

How sweet of you to inquire.
I was like your husband probably. I did not see any useful use for
unproductive motions, in spite of the urging by my wife and daughters. I
thought some walking and doing the maintenance chores were all the activi=
ty
I would need.
I did not realize how much time of the day was spent just sitting. Muscle=

stiffness gets progressively worse, until there are some movements that y=
ou
cannot make. As they say: "Use it or lose it!!"
These exercises are great and they have helped me loosen up again.
They are done mostly sitting in a chair, except for a number of exercises=

in which one stands behind the chair.
The chair is then really a prop to help balance.
All the muscles get a turn in a good program. You feel wonderful after
seriously taking part in an hours worth of these exercises. Some people i=
n
the group are already at the stage where they can hardly move anything.
They just stare at the therapist and probably in their mind think that th=
ey
are doing that themselves too.
Others have trouble telling right from left. Nobody is  being forced.
Everybody can do whatever they think they can manage. I feel lucky I can
still do most anything.
My neurologist is amazed, when he checks me out that I have apparently
still no, or very little, ratcheting effects when moving neck muscles and=

elbows and he finds that I can walk almost normal. After having been on a=
 3
month visit schedule, he moved me to a 6 month schedule. He says: "Whatev=
er
you are doing, keep on doing it. It seems to work!"
I still drive a car and remember that in the first year after diagnosis I=

had trouble looking back because of stiff neck muscles. Now, five years
later I can almost turn my head as I used to when young. It hurts a bit
now, but I can move it! =

If you have access to a program like that, by all means try to get your
husband to join. He'll be glad he did!

Best wishes,

Will Kuipers   =

Dallas, Texas      76-dx'91    <<[log in to unmask]