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After reading messages about your plight, this appears to be a good response to your problem - good luck with your demand and explanation. As an aside, your poem was good to read - easy to understand and soul searching. Thru this I found the name of Glenna, the author about LIVING WELL ... PD. I read her book and have often wondered how she is coping with the disease - any news? Fleurette At 01:32 AM 10/1/97 -0400, you wrote: > October 1, 1997 > > >Melinda Brown >Director of Public Relations >National Parkinson Foundation >Miami, Florida > > >Dear Ms. Brown: > > Because you are the Director of Public Relations at the National >Parkinson's Foundation, I am writing to you to ask you to kindly contact >me either by e-mail or by telephone, to resolve a painful matter that is >upsetting the Parkinson's Community every time it is mentioned, but which >cannot be left unresolved. > > For two and a half years, I have very patiently tried, to the point of >near exhaustion, many avenues to recover the very substantial expenses I >incurred, when the confirmed medical appointment made for me by your NPF >staff, to see Dr. Sanchez-Ramos on May 17, 1995 at 2:00 PM, for which I >travelled to Miami from Maine, accompanied by a Certified Nurse's Aide >on duty at all times, did not happen because no doctor showed up. > > I am writing you with a copy sent to the World Parkinson's Exchange >List, from which I have received many supportive, public e-mail letters >about my ordeal. Most recently, three Listmembers have publicly posted >that an apology is due me, as well as financial reimbursement Many >previous letters have been similar.. > > I have still not heard anything at all from the NPF. The issue created >by the absence of a physician to see me is being heightened and >complicated by the lack of response from the NPF. > > Please do whatever you can to bring this still very painful experience >to resolution. > > I live carefully on small Social Security DIsability monthly checks, >and am in my 10th year of struggling with Young Onset Parkinson's >DIsease. This is not easy. I truly cannot afford the financial loss that >has occurred to me. I had great hopes for wonderful treatment at the NPF, >but these hopes were shattered. > > Rather than my going in the direction of lawyers, I would truly >appreciate it if you would help to work this all out without them. I want >to believe that the NPF shares with me the view that a legal approach is >unnecessary. > > The Listmembers have had to share, some very gracefully but some >extremely uncomfortably an enormous amount of pain that I have uneasily >had to unburden. I do believe you can help restore a sense of balance, >as well as the now severely questioned reputation of the NPF. > > Pleases break the NPF's silence and help end the ordeal. > > Yours very truly, > > Ivan M. Suzman > Portland, Maine > Tel: (207) 797-8488; e-mail: [log in to unmask] >